This website is intended for residents of the United States of America interested in Phenylketonuria, also called PKU


PKU & ME is a support program designed with you in mind.

Managing PKU can be easier with a little help and guidance. PKU is a lifelong condition that you have to manage every day. If the symptoms of high or unstable blood phenylalanine (Phe) levels are left unmanaged, they can have a lasting impact on the brain. That’s why it’s so important to manage PKU.

Together, we can help you manage your PKU.

Through PKU & ME, you will receive:

  • support and guidance for PKU management
  • latest news
  • new recipes
  • opportunities to connect with others in the PKU community

If you have joined the PKU & ME program, you will receive the latest information on PKU management along with tips from others living with PKU. If you are not receiving our emails, check your junk or SPAM folder or call us at 1-844-PKU-FAQS (758-3277).

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Keep PKU symptom management in mind with PKU & ME, a support program focused on providing resources on how to live a healthy life with PKU.