This website is intended for residents of the United States of America interested in Phenylketonuria, also called PKU


Living a healthy life with PKU requires lifelong care.

Even if you’ve been away from the clinic or off management for some time, many of the symptoms of high or unstable blood phenylalanine (Phe) levels can be improved. You can improve your PKU management by using every available option for getting your blood Phe levels low and stable.


Learn how PKU symptoms can be improved.


Ways to help keep your brain healthy and focused

“So many people say that PKU is a diet thing, but I think it is a brain thing.”

Learn how uncontrolled PKU can impact the way you think, feel, and act.


Are those PKU symptoms you are feeling?


It’s time to find a PKU clinic.


Talk to your doctor about current PKU treatment options.

A PKU event might be right for you.

Check for upcoming PKU educational events, and see if there is one in your area that you could attend.