This website is intended for residents of the United States of America interested in Phenylketonuria, also called PKU
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Is it PKU?

PKU Symptom Checker

For people with PKU, the symptoms of high or unstable blood Phe levels can develop slowly over time, and not all patients will have the same symptoms.

Answer the questions below to get an emailed report that you can share with your clinic team at your next appointment.

Never difficult
Sometimes difficult
Always difficult

When blood Phe levels increase, there can be a toxic buildup of Phe in the brain.

Never difficult
Sometimes difficult
Always difficult

Nearly 9 out of 10 adults with PKU are unable to follow a Phe-restricted diet.

Never forgetful
Sometimes forgetful
Always forgetful

The symptoms of high or unstable blood Phe levels can develop slowly over time and be hard to recognize.

Never
Sometimes
Always

High or unstable blood Phe levels have been associated with anxiety and depression in adolescents and adults with PKU.

Never
Sometimes
Always

PKU experts recommend that people with PKU keep their blood Phe levels between 2 and 6 mg/dL throughout their lives.

Never foggy
Sometimes foggy
Always foggy

Nearly 5 out of 10 adults with PKU have blood Phe levels above 10 mg/dL with their current treatment.

Never
Sometimes
Always

You might not notice the impact PKU is having on your everyday life. That’s why it’s important to ask someone who knows you well for their feedback.

Never
Sometimes
Always

Studies have shown that blood Phe levels that remain high over time can have negative effects on memory.