This website is intended for patients and caregivers in Europe, Canada, Australia and New Zealand
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Resources

Tools, resources & support for people with PKU

Explore some of the most commonly used resources:

Blood Phe Control Questionnaire

Learn why it’s important for people with PKU to keep blood Phe levels within recommended ranges.

Blood Phe control questionnaire

How to track your Phe intake

Three different methods for tracking Phe intake. Work with your dietitian to choose what works best for you.

Methods for tracking Phe

PKU Doctor Discussion Guide

A guide to help begin a meaningful discussion with your care team about your experiences living with and managing PKU.

PKU clinic discussion guide