With PKU, it doesn’t take much to make a big difference. Whether you’re in school, at home, or at work, having a plan for managing PKU can be that difference.
You may think that you have your PKU under control, but some of the symptoms of high or unstable blood Phe levels can be hidden. Many people with PKU don’t even recognise the symptoms—but the people around them do.
Whether or not you are “feeling” your PKU, your plan should include tracking the Phe you eat and making regular visits to a PKU clinic.
