This website is intended for patients and caregivers in Europe, Canada, Australia and New Zealand

Advocacy

The websites below can help you become an advocate within the PKU community.

E.S.PKU Logo

The European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (ESPKU)

ESPKU is the umbrella organisation of about 41 national and regional associations from 31 countries established by parents that aims to improve the quality of life of those with PKU

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Live Unlimited

LiveUnlimited is a campaign which has been funded and developed by BioMarin in collaboration with leading European Patient Groups, to help adults with PKU access the multidisciplinary tools and support they need to manage their condition

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