This website is intended for residents of the United States of America interested in Phenylketonuria, also called PKU.

Returning to care

It’s never too late to get back to your PKU clinic

No matter how long you’ve been off your PKU diet or away from the clinic, getting back to care is key.

Many of the symptoms you’re feeling may be caused by high or unstable Phe levels. With the right PKU management plan, it’s possible to keep your Phe to expert-recommended levels. That can help:

  • Protect your brain health
  • Support emotional well-being
  • Improve daily function

Why others made the choice to return to clinic

Eric was after a different lifestyle

Returning to clinic helped Eric lower his Phe levels and live a more energetic life while managing his PKU.

Connie was ready to see a change

When Connie returned to clinic after 50 years, she was able to significantly lower her Phe levels.

Kelly wanted personal & professional benefits

Kelly was able to focus more after she returned to clinic and reduced her Phe levels.

Returning to clinic: A clinician’s perspective

Danielle explains that there are more options than ever to help those affected by PKU.

Supporting your next steps

Find the right PKU
care for you

Locate a clinic or telehealth service near you

Is what you’re feeling
due to PKU?

Understand the impact
of PKU

Learn from
experts

Get advice from specialists on better living with PKU

Explore tools and resources to support your PKU journey