Managing your PKU with diet, medical food/formula, and treatment protects your brain and physical health, while supporting your energy and mood. This can help you pursue your goals, and be your best self, now, and in the future.
The symptoms of PKU can be hard to identify. Over time, they can have a serious impact on your brain. That’s why check-ins at a clinic are so important.
Watch this video to learn more about the impact of PKU and how you can manage it.
Managing your PKU effectively comes down to three key strategies:
Make sure your doctors know your goals, and help your family, friends, and coworkers understand how they can support your PKU management, so you can stay on track.
Not all medications work the same way. If your Phe levels are still high, consider a treatment that may do more to help you manage your PKU.
Consistency with your PKU management is key to keeping Phe levels in your target range. Make PKU management part of your routine, so it fits seamlessly into your daily life.
Locate a clinic or telehealth service near you
Talk to your doctor about treatment options
PKU & ME is designed around you—your questions, your challenges, and your long-term goals. With this program, you’ll receive emails about managing PKU so you can feel more confident with the next steps of your journey. The program includes:
