This website is intended for residents of the United States of America interested in Phenylketonuria, also called PKU.

Connect with support for your PKU

Managing PKU isn’t something you have to do alone—we’re here to help you on your journey

To get started, select the type of support you’re looking for, and fill out the info below.

Join the PKU & Me program to receive:

  • Advice on PKU management
  • PKU-friendly recipes
  • Stories from the community
  • The latest news about PKU

Ask your PKU questions and get personal help with:

  • Access to resources
  • Disease education
  • PKU events (live and virtual)

*Required

Is the person with PKU currently on treatment?*