Caring for someone with PKU—whether a child, teen, or adult—comes with unique challenges and responsibilities. As a caregiver, you play an essential role in supporting your loved one’s health.
Explore tools, resources, and community support to help you gain the knowledge and confidence you need to take care of your loved one.
Discover how Joy and her family learned the importance of starting treatment early and instilling healthy habits for PKU management in their children.
Get advice from specialists on better living with PKU
Build a circle of support with others who understand life with PKU
From salads to scones, there’s something for everyone
PKU & ME is designed around you—your questions, your challenges, and your long-term goals. With this program, you’ll receive emails about managing PKU so you can feel more confident with the next steps of your journey. The program includes:
