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Parents & Care Team

Protecting a developing brain from high blood phenylalanine (Phe) levels is crucial.

You can help your loved one manage PKU through a diet low in Phe, other forms of management, and regular visits to a PKU clinic. With proper management of blood Phe levels, a child with PKU can live a healthy life. PKU experts recommend starting management within the first 10 days of life and continuing management throughout life.

Discover the recommended ways to care for a child living with PKU.

Get advice and information on PKU management

Get help with managing PKU in your day-to-day life.

Download resources for managing PKU

“I was learning about her condition.
I didn’t know what to expect”

Discover how PKU families learned the importance of protecting the brain from high blood Phe levels

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Explore how to keep blood Phe levels low.

Managing PKU

Spice up your PKU menu with these delicious recipes.

Explore low-Phe recipes