{"id":6018,"date":"2025-10-27T10:52:37","date_gmt":"2025-10-27T01:52:37","guid":{"rendered":"https:\/\/pku.biomarin.com\/ja-jp\/?page_id=6018"},"modified":"2025-10-27T10:55:02","modified_gmt":"2025-10-27T01:55:02","slug":"living-with-pku","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/ja-jp\/living-with-pku\/","title":{"rendered":"\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u306e\u3042\u308b\u4eba\u751f"},"content":{"rendered":"
\n
<\/div>\n\t
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<\/div>\n\t
\n\t\t
\n\t\t\t
\n\t\t\t \t\t\t\t\t\t\t\t\t\t\t\t

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u306e\u3042\u308b\u4eba\u751f\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u306e\u3042\u308b\u4eba\u751f\u3002
\n\u75c5\u6c17\u3092\u77e5\u308b\u3053\u3068\u304b\u3089\u306f\u3058\u307e\u308b\u3001\u4eba\u3068\u306e\u3064\u306a\u304c\u308a\u3002<\/p>\n\t\t\t\t\t\t\t\t\n

\n <\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n

\n
\n
\n \n
\n

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u3068\u3068\u3082\u306b\u6b69\u3080\u3001\u305d\u308c\u305e\u308c\u306e\u6bce\u65e5<\/strong><\/h2>\n <\/div>\n\n
\n

 <\/p>\n

\u60a3\u8005\u3055\u3093\u3001\u3054\u5bb6\u65cf\u3001\u533b\u7642\u5f93\u4e8b\u8005\u3001\u305d\u3057\u3066\u60a3\u8005\u3055\u3093\u3092\u652f\u3048\u308b\u3059\u3079\u3066\u306e\u4eba\u3078\u3002
\n\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u3068\u3068\u3082\u306b\u904e\u3054\u3059\u65e5\u3005\u306b\u306f\u3001\u305d\u308c\u305e\u308c\u306e\u60f3\u3044\u304c\u3042\u308a\u307e\u3059\u3002
\n\u75c5\u6c17\u3092\u77e5\u308b\u3053\u3068\u304c\u3001\u3042\u306a\u305f\u306e\u5468\u308a\u306b\u3044\u308b\u304b\u3082\u3057\u308c\u306a\u3044\u8ab0\u304b\u3092\u60f3\u3046\u304d\u3063\u304b\u3051\u306b\u306a\u308a\u307e\u3059\u3088\u3046\u306b\u3002<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n

\n
\n
\n \n
\n

SORA no IRO<\/strong> \uff5ePKU\u3068\u3068\u3082\u306b\uff5e<\/h3>\n <\/div>\n\n
\n
\n
\n\t\t\t \"\"\t\t\t<\/div>\n\t\t\t
\n\t\t\t \"\"\t\t\t<\/div>\n <\/div>\n <\/figure>\n <\/div>\n <\/div>\n<\/div>\n\n
\n\t
\n\t\t
\n\t\t\t
\n\t\t\t \t\t\t\t\t\t\t<\/div>\n\t\t\t
\n\t\t\t \n
\n \t \n\n \"img-soranoiro-over\" \n\t
\n

Vol.1
\u7d4c\u9a13\u304b\u3089\u5b66\u3093\u3060\u6cbb\u7642\u306e\u5927\u5207\u3055\u3002
\u3060\u304b\u3089\u3053\u305d\u3001\u6b21\u306e\u4e16\u4ee3\u306e\u305f\u3081\u306b\u306a\u308c\u3070\u3068\u601d\u3063\u3066\n<\/h4>\n \n

\u9ad8\u6a4b\u512a\u4e00\u3055\u3093\u304c\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u3068\u8a3a\u65ad\u3055\u308c\u305f\u306e\u306f\u3001\u4eca\u304b\u308950\u5e74\u4ee5\u4e0a\u524d\u306e\u3053\u3068\u3002
\u5f53\u6642\u306f\u307e\u3060\u75c5\u6c17\u306b\u3064\u3044\u3066\u306e\u7406\u89e3\u304c\u5341\u5206\u306b\u9032\u3093\u3067\u304a\u3089\u305a\u3001\u5c0f\u5b66\u6821\u5165\u5b66\u6642\u306b\u98df\u4e8b\u7642\u6cd5\u3092\u4e2d\u6b62\u3002\u518d\u958b\u3057\u305f\u306e\u306f40\u6b73\u3092\u904e\u304e\u3066\u304b\u3089\u3067\u3057\u305f\u3002
\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u304c\u539f\u56e0\u3068\u601d\u308f\u308c\u308b\u5fc3\u306e\u4e0d\u8abf\u3092\u4e57\u308a\u8d8a\u3048\u3001\u6cbb\u7642\u3092\u518d\u958b\u3057\u305f\u9ad8\u6a4b\u3055\u3093\u306b\u3001\u3054\u81ea\u8eab\u306e\u7d4c\u9a13\u304b\u3089\u5b66\u3093\u3060\u3053\u3068\u3001\u4f1d\u3048\u305f\u3044\u3053\u3068\u306b\u3064\u3044\u3066\u4f3a\u3044\u307e\u3057\u305f\u3002<\/p>\n \n <\/div>\n

\n \n

SORA no IRO vol.1\u3092\u8aad\u3080<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

\n
\n
\n \n
\n

 
\n <\/p>\n


\n\u307e\u3093\u304c\u3067\u8aad\u3080\u300e\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u306e\u3042\u308b\u4eba\u751f\u300f<\/strong><\/h3>\n <\/div>\n\n
\n
\n
\n\t\t\t \"\"\t\t\t<\/div>\n\t\t\t
\n\t\t\t \"\"\t\t\t<\/div>\n <\/div>\n <\/figure>\n <\/div>\n <\/div>\n<\/div>\n\n
\n\t
\n\t\t
\n\t\t\t
\n\t\t\t \t\t\t\t\t\t\t<\/div>\n\t\t\t
\n\t\t\t \n
\n
\n \"\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u306e\u6cbb\u7642\u3001\u5927\u4eba\u306b\u306a\u3063\u305f\u3089\u3069\u3046\u3059\u308b\u306e\uff1f\"

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u306e\u6cbb\u7642\u3001
\u5927\u4eba\u306b\u306a\u3063\u305f\u3089\u3069\u3046\u3059\u308b\u306e\uff1f\n<\/h4>\n \n

\u5b50\u3069\u3082\u306e\u3053\u308d\u304b\u3089\u98df\u4e8b\u6cbb\u7642\u3092\u7d9a\u3051\u3066\u304d\u305f30\u4ee3\u4f1a\u793e\u54e1\u7537\u6027\u304c\u3001\u5fd9\u3057\u3044\u6bce\u65e5\u306e\u4e2d\u3067\u3001\u5927\u4eba\u306b\u306a\u3063\u3066\u3082\u3001\u6cbb\u7642\u3092\u7d9a\u3051\u305f\u3044\u3002\u3060\u3051\u3069\u3001\u7d9a\u3051\u306b\u304f\u3044\u73fe\u5b9f\u304c\u3042\u308b\u3002\u305d\u3093\u306a\u3042\u308b\u65e5\u76f4\u9762\u3057\u305f\u56f0\u308a\u3054\u3068\u3068\u306f\u30fb\u30fb\uff1f
\u30de\u30f3\u30ac\u5f62\u5f0f\u3067\u304a\u5c4a\u3051\u3057\u307e\u3059\u3002<\/p>\n

\u30dc\u30af\u306f\u65e5\u6c60 \u52c7\u300230\u6b73\u306e\u4f1a\u793e\u54e1\u3002
\u751f\u307e\u308c\u305f\u3068\u304d\u306b\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u3068\u8a3a\u65ad\u3055\u308c\u3001\u3053\u308c\u307e\u3067\u305a\u3063\u3068\u98df\u4e8b\u7642\u6cd5\u3092\u7d9a\u3051\u3066\u304d\u305f\u3002
\u305f\u3060\u3001\u5b50\u3069\u3082\u306e\u3053\u308d\u306f\u3061\u3083\u3093\u3068\u3067\u304d\u3066\u3044\u305f\u306e\u306b\u3001\u6700\u8fd1\u306f\u3064\u3044\u9ad8\u305f\u3093\u3071\u304f\u306e\u3082\u306e\u3092\u98df\u3079\u308b\u3088\u3046\u306b\u306a\u3063\u3066\u3044\u305f\u3093\u3060\u3002
\u305d\u3093\u306a\u3042\u308b\u65e5\u306e\u3053\u3068\uff65\uff65\uff65\u3002<\/p>\n \n <\/div>\n

\n \n

\u5927\u4eba\u306b\u306a\u3063\u305f\u3089\u3069\u3046\u3059\u308b\u306e\uff1f\u3092\u8aad\u3080<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

\n
\n
\n \n
\n

\u60a3\u8005\u3055\u3093\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc<\/strong><\/h3>\n <\/div>\n\n
\n
\n \"\" <\/div>\n <\/figure>\n <\/div>\n <\/div>\n<\/div>\n\n
\n\t
\n\t\t
\n\t\t\t
\n\t\t\t \t\t\t\t\t\t\t<\/div>\n\t\t\t
\n\t\t\t \n
\n \t\t
\n\t\t\tPlay<\/a>\n\t\t<\/div>\n\t
\n

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u3068\u3064\u304d\u5408\u3044\u306a\u304c\u3089\u3001\u81ea\u5206\u3089\u3057\u304f\u751f\u304d\u308b<\/span>\n<\/h4>\n \n

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u60a3\u8005\u3055\u3093\u3068\u4e3b\u6cbb\u533b\u306e\u5148\u751f\u306b\u3001\u75c5\u6c17\u3068\u306e\u4ed8\u304d\u5408\u3044\u65b9\u3084\u81ea\u5206\u3089\u3057\u304f\u751f\u304d\u308b\u3053\u3068\u306b\u3064\u3044\u3066\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u3057\u307e\u3057\u305f\u3002<\/p>\n <\/div>\n<\/div>\n\n

\n \t\t
\n\t\t\tPlay<\/a>\n\t\t<\/div>\n\t
\n

\u60a3\u8005\u3068\u3057\u3066\u306e\u7d4c\u9a13\u3092\u3001\u770b\u8b77\u306b\u6d3b\u304b\u3059<\/span>\n<\/h4>\n \n

\u770b\u8b77\u5e2b\u3068\u3057\u3066\u50cd\u304f\u3001\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u60a3\u8005\u3055\u3093\u306e\u6cbb\u7642\u3068\u306e\u5411\u304d\u5408\u3044\u65b9\u3001\u4ed5\u4e8b\u3078\u306e\u60f3\u3044\u306b\u3064\u3044\u3066\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u3057\u307e\u3057\u305f\u3002<\/p>\n <\/div>\n<\/div>\n\n

\n \t\t
\n\t\t\tPlay<\/a>\n\t\t<\/div>\n\t
\n

\u4e3b\u4f53\u7684\u306b\u6cbb\u7642\u306b\u5411\u304d\u5408\u3046\u3053\u3068\u306b\u3088\u3063\u3066\u3001\u3088\u308a\u6210\u9577\u3057\u305f\u81ea\u5206\u306b\u306a\u308c\u305f\u6c17\u304c\u3059\u308b<\/span>\n<\/h4>\n \n

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u306e\u60a3\u8005\u3055\u3093\u3068\u4e3b\u6cbb\u533b\u306e\u5148\u751f\u306b\u3001\u6cbb\u7642\u3068\u306e\u5411\u304d\u5408\u3044\u65b9\u3084\u5909\u5316\u306b\u3064\u3044\u3066\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u3057\u307e\u3057\u305f\u3002<\/p>\n <\/div>\n<\/div>\n\n

\n \t\t
\n\t\t\tPlay<\/a>\n\t\t<\/div>\n\t
\n

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u306e\u3053\u3068\u3092\u3082\u3063\u3068\u77e5\u3063\u3066\u307b\u3057\u3044<\/span>\n<\/h4>\n \n

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u306e\u60a3\u8005\u3055\u3093\u306b\u3001\u5468\u56f2\u306e\u65b9\u3068\u3064\u304d\u5408\u3044\u3084\u60a3\u8005\u3055\u3093\u540c\u58eb\u306e\u30b3\u30df\u30e5\u30cb\u30c6\u30a3\u306b\u3064\u3044\u3066\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u3057\u307e\u3057\u305f\u3002<\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

\n
\n
\n \n
\n
\n \n \n <\/div>\n
\n \n

\u30c8\u30c3\u30d7\u30da\u30fc\u30b8\u306b\u623b\u308b<\/a><\/p>\n <\/div>\n<\/div>\n <\/div>\n <\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":11,"featured_media":0,"parent":0,"menu_order":8,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-6018","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\n\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u306e\u3042\u308b\u4eba\u751f | \u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09.com<\/title>\n<meta name=\"description\" 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