{"id":56,"date":"2023-02-22T12:10:55","date_gmt":"2023-02-22T12:10:55","guid":{"rendered":"https:\/\/pkudsepatient-dev-001.azurewebsites.net\/jp\/?page_id=56"},"modified":"2025-10-09T12:44:21","modified_gmt":"2025-10-09T03:44:21","slug":"management","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/ja-jp\/management\/","title":{"rendered":"\u30b3\u30f3\u30c8\u30ed\u30fc\u30eb"},"content":{"rendered":"
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\u4ee5\u524d\u3088\u308a\u6cbb\u7642\u306e\u9078\u629e\u80a2\u306f\u5897\u3048\u3066\u3044\u307e\u3059\u3002\u95a2\u9023\u3059\u308b\u75c7\u72b6\u304b\u3089\u89e3\u653e\u3055\u308c\u307e\u3057\u3087\u3046<\/p>\n\t\t\t\t\t\t\t\t\n

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\u5065\u5eb7\u306a\u751f\u6d3b\u3092\u9001\u308b\u306b\u306f\u3001
\n\u751f\u6daf\u306b\u308f\u305f\u3063\u3066\u2f8e\u4e2d\u30d5\u30a7\u30cb\u30eb\u30a2\u30e9\u30cb\u30f3\uff08Phe\uff09\u6fc3\u5ea6\u3092\u30b3\u30f3\u30c8\u30ed\u30fc\u30eb\u3059\u308b\u3053\u3068\u304c\u91cd\u8981\u3067\u3059\u3002<\/strong><\/h2>\n

\u3057\u3070\u3089\u304f\u901a\u9662\u3084\u98df\u4e8b\u7642\u6cd5\u304b\u3089\u96e2\u308c\u3066\u3044\u305f\u3068\u3057\u3066\u3082\u3001\u8840\u4e2d\u30d5\u30a7\u30cb\u30eb\u30a2\u30e9\u30cb\u30f3\uff08Phe\uff09\u6fc3\u5ea6\u304c\u9ad8\u3044\u3053\u3068\u306b\u95a2\u9023\u3059\u308b\u75c7\u72b6\u306e\u591a\u304f\u306f\u6539\u5584\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3059\u3002
\n\u8840\u4e2d\u30d5\u30a7\u30cb\u30eb\u30a2\u30e9\u30cb\u30f3\uff08Phe\uff09\u6fc3\u5ea6\u304c\u9ad8\u3044\u72b6\u614b\u304c\u3001\u3042\u306a\u305f\u306e\u8003\u3048\u65b9\u3001\u611f\u3058\u65b9\u3001\u884c\u52d5\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u308b\u304b\u7d39\u4ecb\u3057\u307e\u3059\u3002<\/p>\n <\/div>\n\n

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\u8840\u4e2d\u30d5\u30a7\u30cb\u30eb\u30a2\u30e9\u30cb\u30f3\uff08Phe\uff09\u6fc3\u5ea6\u304c\u9ad8\u3044\u72b6\u614b\u306f\u3001\u81ea\u899a\u3057\u306b\u304f\u3044<\/strong><\/h3>\n <\/div>\n\n
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\n\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u306e\u2f08\u306f\u3001\u8840\u4e2d\u30d5\u30a7\u30cb\u30eb\u30a2\u30e9\u30cb\u30f3\uff08Phe\uff09\u6fc3\u5ea6\u304c\u9ad8\u3044\u72b6\u614b\u72b6\u614b\u304c\u7d9a\u304f\u3068\u3001\u8133\u306b\u5f71\u97ff\u3092\u4e0e\u3048\u308b\u53ef\u80fd\u6027\u304c\u3042\u308a\u307e\u3059\u3002<\/p>\n

\u8840\u4e2d\u30d5\u30a7\u30cb\u30eb\u30a2\u30e9\u30cb\u30f3\uff08Phe\uff09\u6fc3\u5ea6\u304c\u9ad8\u3044\u72b6\u614b\u304c\u7d9a\u304f\u3068\u3001\u4e0b\u8a18\u306e\u3088\u3046\u306a\u75c7\u72b6\u304c\u307f\u3089\u308c\u307e\u3059\u3002<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n

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PKU\u75c7\u72b6\u30c1\u30a7\u30c3\u30af\u30b7\u30fc\u30c8<\/a><\/p>\n <\/div>\n\t\t\t\t\t <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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\u6cbb\u7642\u3092\u59cb\u3081\u308b\u306e\u306b\u9045\u3059\u304e\u308b\u3053\u3068\u306f\u3042\u308a\u307e\u305b\u3093<\/strong><\/h3>\n <\/div>\n\n
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\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u306e\u75c7\u72b6\u306f\u81ea\u899a\u3057\u306b\u304f\u304f\u3001\u6642\u9593\u3092\u304b\u3051\u3066\u3086\u3063\u304f\u308a\u3068\u9032\u884c\u3057\u3066\u3044\u304d\u307e\u3059\u3002
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\n\u6700\u8fd1\u3001\u96c6\u4e2d\u3067\u304d\u306a\u3044\u3001\u843d\u3061\u8fbc\u307f\u3084\u3059\u3044\u3001\u307c\u3093\u3084\u308a\u3057\u305f\u308a\u3001\u6df7\u4e71\u3057\u305f\u308a\u3001\u4e0d\u5b89\u306b\u306a\u3063\u305f\u308a\u3057\u3066\u3044\u308b\u306e\u306a\u3089\u3001\u305d\u308c\u306f\u3042\u306a\u305f\u306e\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u306e\u75c7\u72b6\u304b\u3082\u3057\u308c\u307e\u305b\u3093\u3002<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n

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\n\u305d\u306e\u305f\u3081\u3001\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u3092\u751f\u6daf\u306b\u308f\u305f\u3063\u3066\u6cbb\u7642\u3059\u308b\u3053\u3068\u304c\u975e\u5e38\u306b\u91cd\u8981\u3067\u3059\u3002<\/p>\n <\/div>\n \n

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\u60a3\u8005\u3055\u3093\u306e\u58f0<\/strong><\/h3>\n <\/div>\n\n
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\u75c5\u9662\u306b\u884c\u304d\u307e\u3057\u3087\u3046<\/strong><\/h2>\n <\/div>\n\n
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\u3042\u306a\u305f\u306b\u5408\u3063\u305f\u6cbb\u7642\u3092\u898b\u3064\u3051\u3066\u304f\u3060\u3055\u3044\u3002<\/strong><\/h3>\n <\/div>\n\n
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\u533b\u5e2b\u306f\u3001\u8840\u4e2d\u30d5\u30a7\u30cb\u30eb\u30a2\u30e9\u30cb\u30f3\uff08Phe\uff09\u6fc3\u5ea6\u304c\u9ad8\u3044\u3053\u3068\u306b\u95a2\u9023\u3059\u308b\u75c7\u72b6\u3092\u8a3a\u65ad\u3057\u3001\u3042\u306a\u305f\u306b\u5408\u3063\u305f\u6cbb\u7642\u3092\u691c\u8a0e\u3057\u3066\u304f\u308c\u307e\u3059\u3002<\/p>\n

\u5c11\u3057\u3067\u3082\u56f0\u3063\u3066\u3044\u308b\u3053\u3068\u30fb\u6c17\u306b\u306a\u3063\u3066\u3044\u308b\u3053\u3068\u306f\u6b63\u76f4\u306b\u3001\u305d\u3057\u3066\u9060\u616e\u305b\u305a\u306b\u8a71\u3057\u3066\u304f\u3060\u3055\u3044\u3002<\/p>\n <\/div>\n \n

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\u304a\u8fd1\u304f\u306e\u75c5\u9662\u3092\u63a2\u3059\n<\/h2>\n\t\t\t\t\t\t \t\t\t\t\t\t \t\t\t\t\t\t

\u81ea\u5b85\u3084\u8077\u5834\u306e\u6700\u5bc4\u308a\u306e\u533b\u7642\u6a5f\u95a2\u3092\u63a2\u3057\u307e\u3057\u3087\u3046\u3002<\/p>\n\t\t\t\t\t\t \t\t\t\t\t <\/div>\n\t\t\t\t\t

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\u304a\u8fd1\u304f\u306e\u75c5\u9662\u3092\u63a2\u3059<\/a><\/p>\n <\/div>\n\t\t\t\t\t <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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\u60a3\u8005\u3055\u3093\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc<\/strong><\/h3>\n <\/div>\n\n
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PATIENT INTERVIEW vol.1\n<\/h4>\n \n

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u3068\u3064\u304d\u5408\u3044\u306a\u304c\u3089\u3001\u81ea\u5206\u3089\u3057\u304f\u751f\u304d\u308b<\/h5>\n

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u60a3\u8005\u3055\u3093\u3068\u4e3b\u6cbb\u533b\u306e\u5148\u751f\u306b\u3001\u75c5\u6c17\u3068\u306e\u4ed8\u304d\u5408\u3044\u65b9\u3084\u81ea\u5206\u3089\u3057\u304f\u751f\u304d\u308b\u3053\u3068\u306b\u3064\u3044\u3066\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u3057\u307e\u3057\u305f\u3002<\/p>\n <\/div>\n<\/div>\n\n

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PATIENT INTERVIEW vol.2\n<\/h4>\n \n

\u60a3\u8005\u3068\u3057\u3066\u306e\u7d4c\u9a13\u3092\u3001\u770b\u8b77\u306b\u6d3b\u304b\u3059<\/h5>\n

\u770b\u8b77\u5e2b\u3068\u3057\u3066\u50cd\u304f\u3001\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u60a3\u8005\u3055\u3093\u306e\u6cbb\u7642\u3068\u306e\u5411\u304d\u5408\u3044\u65b9\u3001\u4ed5\u4e8b\u3078\u306e\u60f3\u3044\u306b\u3064\u3044\u3066\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u3057\u307e\u3057\u305f\u3002<\/p>\n <\/div>\n<\/div>\n\n

\n \t\t
\n\t\t\tPlay<\/a>\n\t\t<\/div>\n\t
\n

PATIENT INTERVIEW vol.3\n<\/h4>\n \n

\u4e3b\u4f53\u7684\u306b\u6cbb\u7642\u306b\u5411\u304d\u5408\u3046\u3053\u3068\u306b\u3088\u3063\u3066\u3001\u3088\u308a\u6210\u9577\u3057\u305f\u81ea\u5206\u306b\u306a\u308c\u305f\u6c17\u304c\u3059\u308b<\/h5>\n

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u306e\u60a3\u8005\u3055\u3093\u3068\u4e3b\u6cbb\u533b\u306e\u5148\u751f\u306b\u3001\u6cbb\u7642\u3068\u306e\u5411\u304d\u5408\u3044\u65b9\u3084\u5909\u5316\u306b\u3064\u3044\u3066\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u3057\u307e\u3057\u305f\u3002<\/p>\n <\/div>\n<\/div>\n\n

\n \t\t
\n\t\t\tPlay<\/a>\n\t\t<\/div>\n\t
\n

PATIENT INTERVIEW vol.4\n<\/h4>\n \n

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u306e\u3053\u3068\u3092\u3082\u3063\u3068\u77e5\u3063\u3066\u307b\u3057\u3044<\/h5>\n

\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\u306e\u60a3\u8005\u3055\u3093\u306b\u3001\u5468\u56f2\u306e\u65b9\u3068\u3064\u304d\u5408\u3044\u3084\u60a3\u8005\u3055\u3093\u540c\u58eb\u306e\u30b3\u30df\u30e5\u30cb\u30c6\u30a3\u306b\u3064\u3044\u3066\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u3057\u307e\u3057\u305f\u3002<\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

\n\t
\n\t\t
\n\t\t\t
\n\t\t\t \t\t\t\t\t\t\t<\/div>\n\t\t\t
\n\t\t\t \n
\n \t \n\n \"\" \n\t
\n

PKU\u75c7\u72b6\u30c1\u30a7\u30c3\u30af\u30b7\u30fc\u30c8\n<\/h4>\n \n

PKU\u306b\u95a2\u9023\u3059\u308b\u75c7\u72b6\u3092\u30c1\u30a7\u30c3\u30af\u3057\u307e\u3057\u3087\u3046\u3002<\/p>\n \n <\/div>\n

\n \n

PKU\u75c7\u72b6\u30c1\u30a7\u30c3\u30af\u30b7\u30fc\u30c8<\/a><\/p>\n <\/div>\n<\/div>\n\n

\n \t \n\n \"\" \n\t
\n

\u4f4e\u30bf\u30f3\u30d1\u30af\u98df\u30ec\u30b7\u30d4\n<\/h4>\n \n

\u304a\u3044\u3057\u3044\u4f4e\u30bf\u30f3\u30d1\u30af\u98df\u30ec\u30b7\u30d4\u3092\u3054\u89a7\u304f\u3060\u3055\u3044\u3002<\/p>\n \n <\/div>\n

\n \n

\u4f4e\u30bf\u30f3\u30d1\u30af\u98df\u30ec\u30b7\u30d4<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

\n
\n\t\t
\n
\n

\u8a3a\u65ad\u3068\u6cbb\u7642<\/a><\/p>\n <\/div>\n

\n

\u30b5\u30dd\u30fc\u30c8\u5236\u5ea6<\/a><\/p>\n <\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":11,"featured_media":0,"parent":0,"menu_order":4,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-56","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\n\u5927\u4eba\u306e\u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09\u30b3\u30f3\u30c8\u30ed\u30fc\u30eb | \u30d5\u30a7\u30cb\u30eb\u30b1\u30c8\u30f3\u5c3f\u75c7\uff08PKU\uff09.com<\/title>\n<meta name=\"description\" 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