{"id":72,"date":"2023-02-22T12:20:20","date_gmt":"2023-02-22T12:20:20","guid":{"rendered":"https:\/\/pkudsepatient-dev-001.azurewebsites.net\/it-it\/?page_id=72"},"modified":"2024-10-09T17:40:01","modified_gmt":"2024-10-09T17:40:01","slug":"risorse","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/it-it\/risorse\/","title":{"rendered":"Risorse"},"content":{"rendered":"
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Risorse e sostegno\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\n

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Risorse e gruppi di sostegno per la PKU<\/h2>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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Questionario sul controllo della Phe nel sangue \n<\/h4>\n \n

Impara perch\u00e9 \u00e8 importante mantenere i livelli di Phe nel sangue entro il range di valori consigliato.<\/p>\n \n <\/div>\n

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Scarica<\/a><\/p>\n <\/div>\n<\/div>\n\n

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Guida alla discussione clinica sulla PKU\n<\/h4>\n \n

Guida per facilitare l\u2019avvio di una proficua discussione con gli specialisti del centro di riferimento sulla tua esperienza con la PKU.<\/p>\n \n <\/div>\n

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Scarica<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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I siti riportati di seguito possono aiutarti a diventare un sostenitore della comunit\u00e0 della PKU<\/h2>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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The European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (ESPKU)\n<\/h3>\n

La ESPKU, la Societ\u00e0 Europea per la Fenilchetonuria, \u00e8 l\u2019organizzazione ombrello di genitori che riunisce circa 41 associazioni nazionali e regionali provenienti da 31 paesi che mira al miglioramento della qualit\u00e0 della vita delle persone con PKU<\/p>\n

Visita il sito<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-72","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nPazienti affetti da PKU- BioMarin<\/title>\n<meta name=\"description\" content=\"Scopri tutte le risorse e gruppi di sostegno per pazienti affetti da PKU.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/pku.biomarin.com\/it-it\/risorse\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Pazienti affetti da PKU- BioMarin\" \/>\n<meta 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