{"id":55,"date":"2023-11-06T10:45:50","date_gmt":"2023-11-06T10:45:50","guid":{"rendered":"https:\/\/liveunlimitedpku-dev-001.azurewebsites.net\/hu-hu\/?page_id=55"},"modified":"2024-12-07T20:48:50","modified_gmt":"2024-12-07T20:48:50","slug":"mit-tehetek","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/hu-hu\/liveunlimited\/mit-tehetek\/","title":{"rendered":"Mit tehetek?"},"content":{"rendered":"<div id=\"acf-block-654a10d2ac6e4\" class=\"hero hero-no-overlay\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/pku.biomarin.com\/hu-hu\/liveunlimited\/wp-content\/uploads\/sites\/13\/2023\/11\/tup.png?v=0.74);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/pku.biomarin.com\/hu-hu\/liveunlimited\/wp-content\/uploads\/sites\/13\/2023\/11\/Tupperware.png?v=0.74);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t    <span class=\"section-title\"> Az \u00e9let bonyolult, ha nincsenek meg a sz\u00fcks\u00e9ges eszk\u00f6z\u00f6k<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t    <h1>MIT TEHETEK?\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\n                <p class=\"inline-buttons\">\n                                                        <\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n<div id=\"acf-block-654a10d2acb11\" class=\"block accordion\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                                <div class=\"accordion-item\">\n                        <div class=\"accordion-title\">\n                            <div class=\"accordion-trigger\">\n                                <span><\/span>\n                                <span><\/span>\n                            <\/div>\n                            <h2>Hogy t\u00e1mogathatom az \u00c9lj Teljes \u00c9letet kamp\u00e1nyt a k\u00f6z\u00f6ss\u00e9gi m\u00e9di\u00e1ban?\n<\/h2>\n                        <\/div>\n                        <div class=\"accordion-content\">\n                                                            <p>Az al\u00e1bbi lehet\u0151s\u00e9gek \u00e1llnak az \u00d6n rendelkez\u00e9s\u00e9re:<\/p>\n<ul>\n<li>A helyi d\u00f6nt\u00e9shoz\u00f3 t\u00e1j\u00e9koztat\u00e1s\u00e1val a kamp\u00e1nyr\u00f3l \u00e9s a PKU-r\u00f3l Twitteren<\/li>\n<li>A videok megoszt\u00e1s\u00e1val \u00e9s l\u00e1jkol\u00e1s\u00e1val az \u00d6n YouTube csatorn\u00e1j\u00e1n<\/li>\n<li>A kamp\u00e1nnyal kapcsolatos tartalmak megoszt\u00e1s\u00e1val a Facebook-on, a Twitteren, az Instagramon \u00e9s a PKU k\u00f6z\u00f6ss\u00e9g m\u00e1s tagjait\u00f3l sz\u00e1rmaz\u00f3 tartalom vissza-tweetel\u00e9s\u00e9vel<\/li>\n<li>A mi honlapunk linkj\u00e9nek megoszt\u00e1s\u00e1val saj\u00e1t k\u00f6z\u00f6ss\u00e9gi m\u00e9dia posztjaiban<\/li>\n<\/ul>\n                                                    <\/div>\n                    <\/div>\n                                                                            <div class=\"accordion-item\">\n                        <div class=\"accordion-title\">\n                            <div class=\"accordion-trigger\">\n                                <span><\/span>\n                                <span><\/span>\n                            <\/div>\n                            <h2>Hogy seg\u00edthetek m\u00e9g?\n<\/h2>\n                        <\/div>\n                        <div class=\"accordion-content\">\n                                                            <p>Sok m\u00e1s m\u00f3don is seg\u00edthet felh\u00edvni a figyelmet az\u00a0<strong>\u00c9lj Teljes \u00c9letet<\/strong>\u00a0kamp\u00e1nyra \u00e9s a PKU-ra. P\u00e9ld\u00e1ul k\u00e9rjen egy p\u00e9ld\u00e1nyt a kamp\u00e1nycsomagunkb\u00f3l, \u00e9s ossza meg a tartalm\u00e1t emailen koll\u00e9g\u00e1ival, vagy hozza sz\u00f3ba a PKU-t bar\u00e1tokkal besz\u00e9lgetve vacsora k\u00f6zben.<\/p>\n<p>Ha k\u00e9rd\u00e9se van a r\u00e9szv\u00e9tel esetleges m\u00e1s m\u00f3djaival kapcsolatban, \u00edrjon emailt a <a href=\"mailto:LiveunlimitedPKU@bmrn.com\">LiveunlimitedPKU@bmrn.com<\/a> c\u00edmre.<\/p>\n                                                    <\/div>\n                    <\/div>\n                                                                            <div class=\"accordion-item\">\n                        <div class=\"accordion-title\">\n                            <div class=\"accordion-trigger\">\n                                <span><\/span>\n                                <span><\/span>\n                            <\/div>\n                            <h2>Honnan kaphatok seg\u00edts\u00e9get a csal\u00e1dom sz\u00e1m\u00e1ra, vagy olyasvalaki sz\u00e1m\u00e1ra, akir\u0151l tudom, hogy PKU-val \u00e9l?\n<\/h2>\n                        <\/div>\n                        <div class=\"accordion-content\">\n                                                            <p>Ha seg\u00edts\u00e9gre, t\u00e1mogat\u00e1sra vagy \u00fatmutat\u00e1sra van sz\u00fcks\u00e9ge, az \u00d6n orsz\u00e1g\u00e1nak betegcsoport k\u00f6z\u00f6ss\u00e9gei a legc\u00e9lszer\u0171bb forr\u00e1s erre a c\u00e9lra. Tov\u00e1bbi inform\u00e1ci\u00f3t az ilyen csoportokr\u00f3l \u00e9s az \u00e1ltaluk k\u00edn\u00e1lt t\u00e1mogat\u00e1sr\u00f3l a betegeknek sz\u00f3l\u00f3 t\u00e1mogat\u00f3i (Patient support) oldalunkon tal\u00e1l.<\/p>\n                                                    <\/div>\n                    <\/div>\n                                                                            <div class=\"accordion-item\">\n                        <div class=\"accordion-title\">\n                            <div class=\"accordion-trigger\">\n                                <span><\/span>\n                                <span><\/span>\n                            <\/div>\n                            <h2>Hogy gy\u0171jthetek forr\u00e1sokat, illetve hogy adom\u00e1nyozhatok p\u00e9nzt a t\u00e9m\u00e1val foglalkoz\u00f3 j\u00f3t\u00e9konys\u00e1gi szervezeteknek?\n<\/h2>\n                        <\/div>\n                        <div class=\"accordion-content\">\n                                                            <p>Az\u00a0<strong>\u00c9lj Teljes \u00c9letet<\/strong>\u00a0kamp\u00e1ny nem gy\u0171jt adom\u00e1nyokat, \u00e9s nem szervez adom\u00e1nygy\u0171jt\u0151 akci\u00f3kat. \u00d6n azonban megl\u00e1togathatja b\u00e1rmelyik betegszervezetet, \u00e9s t\u00e1j\u00e9koz\u00f3dhat arr\u00f3l, hogyan gy\u0171jthet p\u00e9nzt, vagy hogyan t\u00e1mogathatja tev\u00e9kenys\u00e9g\u00fcket egy\u00e9b m\u00f3don. <a href=\"https:\/\/pku.biomarin.com\/hu-hu\/liveunlimited\/beteg-tamogatas\/\">Adataikat a betegeknek sz\u00f3l\u00f3 t\u00e1mogat\u00f3i oldalunkon tal\u00e1lja.<\/a><\/p>\n                                                    <\/div>\n                    <\/div>\n                                                                            <div class=\"accordion-item\">\n                        <div class=\"accordion-title\">\n                            <div class=\"accordion-trigger\">\n                                <span><\/span>\n                                <span><\/span>\n                            <\/div>\n                            <h2>Hol tudhatok meg t\u00f6bbet a PKU-r\u00f3l?\n<\/h2>\n                        <\/div>\n                        <div class=\"accordion-content\">\n                                                            <p>A betegs\u00e9gr\u0151l tov\u00e1bbi inform\u00e1ci\u00f3t a \u201ePKU-r\u00f3l\u201d oldalon tal\u00e1l, vagy vegye fel a kapcsolatot helyi betegcsoportj\u00e1val, amelynek el\u00e9rhet\u0151s\u00e9ge a mi Beteg t\u00e1mogat\u00f3 oldalunkon tal\u00e1lhat\u00f3.<\/p>\n<p>&nbsp;<\/p>\n                                                    <\/div>\n                    <\/div>\n                            \t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-55","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Mit tehetek? | Live Unlimited PKU<\/title>\n<meta name=\"description\" content=\"Sz\u00e1mos m\u00f3don seg\u00edthet felh\u00edvni a figyelmet a Live Unlimited kamp\u00e1nyra \u00e9s a PKU-ra. P\u00e9ld\u00e1ul ossza meg a tartalmat koll\u00e9g\u00e1ival e-mailben, vagy vonja be a PKU-t a besz\u00e9lget\u00e9sbe a bar\u00e1taival vacsora k\u00f6zben.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/pku.biomarin.com\/hu-hu\/liveunlimited\/mit-tehetek\/\" \/>\n<meta property=\"og:locale\" content=\"hu_HU\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Mit tehetek? | Live Unlimited PKU\" \/>\n<meta property=\"og:description\" content=\"Sz\u00e1mos m\u00f3don seg\u00edthet felh\u00edvni a figyelmet a Live Unlimited kamp\u00e1nyra \u00e9s a PKU-ra. 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