{"id":78,"date":"2023-02-22T12:22:09","date_gmt":"2023-02-22T12:22:09","guid":{"rendered":"https:\/\/pku.biomarin.com\/en-us\/?page_id=78"},"modified":"2025-11-19T21:33:28","modified_gmt":"2025-11-19T21:33:28","slug":"resources","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-us\/resources\/","title":{"rendered":"Resources"},"content":{"rendered":"
\n
<\/div>\n\t
<\/div>\n \t
<\/div>\n\t
\n\t\t
\n\t\t\t
\n\t\t\t \t\t\t\t\t\t\t\t\t\t\t\t

Resources\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\n

\n <\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n

\n
\n
\n \n
\n

Tools, resources & support for people with PKU<\/h2>\n

Explore some of the most commonly used resources:<\/h3>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
\n\t
\n\t\t
\n\t\t\t
\n\t\t\t \t\t\t\t\t\t\t<\/div>\n\t\t\t
\n\t\t\t \n
\n \t \n\n \"\" \n\t
\n

Contact a BioMarin Account Manager for information about your PKU journey\n<\/h4>\n \n \n <\/div>\n
\n \n

Learn more<\/a><\/p>\n <\/div>\n<\/div>\n\n

\n \t \n\n \"Events\" \n\t
\n

Join an educational event for people with PKU\n<\/h4>\n \n \n <\/div>\n
\n \n

Explore live & virtual events<\/a><\/p>\n <\/div>\n<\/div>\n\n

\n \t \n\n \"symptom \n\t
\n

PKU affects everyone differently\u2014take note of how it affects you\n<\/h4>\n \n \n <\/div>\n
\n \n

Use the Symptom Checker <\/a><\/p>\n <\/div>\n<\/div>\n\n

\n \t \n\n \"Clinic\" \n\t
\n

Ready to start the conversation with your healthcare team?\n<\/h4>\n \n \n <\/div>\n
\n \n

Find a clinic near you<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

\n
\n
\n \n
\n

Browse the full library<\/h2>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
\n\t
\n\t\t
\n\t\t
\n
\n
\n <\/span>\n <\/span>\n <\/div>\n

Downloadable resources\n<\/h2>\n <\/div>\n
\n
Impact of high PHE<\/a><\/h5>\n

Symptoms of high blood Phe levels vary from person to person. Learn how high blood Phe levels may be affecting you and what you can do about it.<\/p>\n

Clinical Discussion Guide <\/a><\/h5>\n

This tool can help you start the conversation with your healthcare team about finding the right PKU management plan for you.<\/p>\n

My PKU Symptom Tracker<\/a><\/h5>\n

PKU affects everyone differently\u2014use this questionnaire to note how its symptoms affect you.<\/p>\n

Collecting Blood Phe at Home<\/a><\/h5>\n

Learn how to collect your blood Phe at home.<\/p>\n

Recipes<\/a><\/h5>\n

Explore our collection of recipes specifically developed for people with PKU.<\/p>\n <\/div>\n <\/div>\n

\n
\n
\n <\/span>\n <\/span>\n <\/div>\n

Interactive tools\n<\/h2>\n <\/div>\n
\n
Symptom Checker<\/a><\/h5>\n
Clinic Finder <\/a><\/h5>\n <\/div>\n <\/div>\n
\n
\n
\n <\/span>\n <\/span>\n <\/div>\n

Connect with the PKU community\n<\/h2>\n <\/div>\n
\n
PKU Facebook Page <\/a><\/h5>\n
PKU Instagram Page <\/a><\/h5>\n
PKU & ME<\/a><\/h5>\n

Advocacy Groups<\/h4>\n

National and International Organizations<\/strong><\/h5>\n
National PKU Alliance (NPKUA)<\/a><\/h5>\n
flok<\/a><\/h5>\n
Regional and State Organizations<\/strong><\/h5>\n
Alabama PKU Foundation<\/a><\/h5>\n
Alliance of PKU Families<\/a><\/h5>\n
Arizona Network for PKU and Allied Disorders (ANPAD)<\/a><\/h5>\n
California Coalition for PKU and Allied Disorders<\/a><\/h5>\n
CamPHEver Texas<\/a><\/h5>\n
Georgia PKU Connect<\/a><\/h5>\n
Intermountain PKU and Allied Disorders Association<\/a><\/h5>\n
Iowa PKU Foundation<\/a><\/h5>\n
Louisiana Metabolic Disorders Coalition<\/a><\/h5>\n
Mid-Atlantic Connection for PKU and Allied Disorders (MACPAD)<\/a><\/h5>\n
New England Connection for PKU and Allied Disorders (NECPAD)<\/a><\/h5>\n
PKU Organization of Illinois<\/a><\/h5>\n
PKU Organization of Wisconsin<\/a><\/h5>\n
Tennessee PKU Foundation<\/a><\/h5>\n <\/div>\n <\/div>\n
\n
\n
\n <\/span>\n <\/span>\n <\/div>\n

Video resources\n<\/h2>\n <\/div>\n
\n
PKU YouTube Channel<\/a><\/h5>\n <\/div>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-78","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nResources - BioMarin PKU DSE Patient EN-US<\/title>\n<meta name=\"description\" content=\"Download PKU resources, watch videos, use interactive tools, hear from people living with PKU. Browse the full resource library. Explore live & virtual events.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/pku.biomarin.com\/en-us\/resources\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Resources - BioMarin PKU DSE Patient EN-US\" \/>\n<meta property=\"og:description\" content=\"Download PKU resources, watch videos, use interactive tools, hear from people living with PKU. Browse the full resource library. Explore live & virtual events.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/pku.biomarin.com\/en-us\/resources\/\" \/>\n<meta property=\"og:site_name\" content=\"BioMarin PKU DSE Patient EN-US\" \/>\n<meta property=\"article:modified_time\" content=\"2025-11-19T21:33:28+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/pku.biomarin.com\/en-us\/resources\/\",\"url\":\"https:\/\/pku.biomarin.com\/en-us\/resources\/\",\"name\":\"Resources - BioMarin PKU DSE Patient EN-US\",\"isPartOf\":{\"@id\":\"https:\/\/pku.biomarin.com\/en-us\/#website\"},\"datePublished\":\"2023-02-22T12:22:09+00:00\",\"dateModified\":\"2025-11-19T21:33:28+00:00\",\"description\":\"Download PKU resources, watch videos, use interactive tools, hear from people living with PKU. Browse the full resource library. Explore live & virtual events.\",\"breadcrumb\":{\"@id\":\"https:\/\/pku.biomarin.com\/en-us\/resources\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/pku.biomarin.com\/en-us\/resources\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/pku.biomarin.com\/en-us\/resources\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/pku.biomarin.com\/en-us\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Resources\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/pku.biomarin.com\/en-us\/#website\",\"url\":\"https:\/\/pku.biomarin.com\/en-us\/\",\"name\":\"BioMarin PKU DSE Patient EN-US\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/pku.biomarin.com\/en-us\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Resources - BioMarin PKU DSE Patient EN-US","description":"Download PKU resources, watch videos, use interactive tools, hear from people living with PKU. Browse the full resource library. Explore live & virtual events.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/pku.biomarin.com\/en-us\/resources\/","og_locale":"en_US","og_type":"article","og_title":"Resources - BioMarin PKU DSE Patient EN-US","og_description":"Download PKU resources, watch videos, use interactive tools, hear from people living with PKU. Browse the full resource library. Explore live & virtual events.","og_url":"https:\/\/pku.biomarin.com\/en-us\/resources\/","og_site_name":"BioMarin PKU DSE Patient EN-US","article_modified_time":"2025-11-19T21:33:28+00:00","twitter_card":"summary_large_image","schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/pku.biomarin.com\/en-us\/resources\/","url":"https:\/\/pku.biomarin.com\/en-us\/resources\/","name":"Resources - BioMarin PKU DSE Patient EN-US","isPartOf":{"@id":"https:\/\/pku.biomarin.com\/en-us\/#website"},"datePublished":"2023-02-22T12:22:09+00:00","dateModified":"2025-11-19T21:33:28+00:00","description":"Download PKU resources, watch videos, use interactive tools, hear from people living with PKU. Browse the full resource library. Explore live & virtual events.","breadcrumb":{"@id":"https:\/\/pku.biomarin.com\/en-us\/resources\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/pku.biomarin.com\/en-us\/resources\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/pku.biomarin.com\/en-us\/resources\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/pku.biomarin.com\/en-us\/"},{"@type":"ListItem","position":2,"name":"Resources"}]},{"@type":"WebSite","@id":"https:\/\/pku.biomarin.com\/en-us\/#website","url":"https:\/\/pku.biomarin.com\/en-us\/","name":"BioMarin PKU DSE Patient EN-US","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/pku.biomarin.com\/en-us\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"}]}},"_links":{"self":[{"href":"https:\/\/pku.biomarin.com\/en-us\/wp-json\/wp\/v2\/pages\/78","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/pku.biomarin.com\/en-us\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/pku.biomarin.com\/en-us\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/pku.biomarin.com\/en-us\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/pku.biomarin.com\/en-us\/wp-json\/wp\/v2\/comments?post=78"}],"version-history":[{"count":138,"href":"https:\/\/pku.biomarin.com\/en-us\/wp-json\/wp\/v2\/pages\/78\/revisions"}],"predecessor-version":[{"id":4561,"href":"https:\/\/pku.biomarin.com\/en-us\/wp-json\/wp\/v2\/pages\/78\/revisions\/4561"}],"wp:attachment":[{"href":"https:\/\/pku.biomarin.com\/en-us\/wp-json\/wp\/v2\/media?parent=78"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}