{"id":78,"date":"2023-02-22T12:22:09","date_gmt":"2023-02-22T12:22:09","guid":{"rendered":"https:\/\/pkudsepatient-dev-001.azurewebsites.net\/en-us\/?page_id=78"},"modified":"2024-07-08T22:35:32","modified_gmt":"2024-07-08T22:35:32","slug":"resources","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-us\/resources\/","title":{"rendered":"Resources"},"content":{"rendered":"
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Resources\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n
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Tools, resources & support for people with PKU<\/h2>\n

Explore some of the most commonly used resources:<\/h3>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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Contact a BioMarin Account Manager for information about your PKU journey\n<\/h4>\n \n \n <\/div>\n
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Learn more<\/a><\/p>\n <\/div>\n<\/div>\n\n

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Join an educational event for people with PKU\n<\/h4>\n \n \n <\/div>\n
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Explore live & virtual events<\/a><\/p>\n <\/div>\n<\/div>\n\n

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PKU affects everyone differently\u2014take note of how it affects you\n<\/h4>\n \n \n <\/div>\n
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Use the Symptom Checker <\/a><\/p>\n <\/div>\n<\/div>\n\n

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Ready to start the conversation with your healthcare team?\n<\/h4>\n \n \n <\/div>\n
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Find a clinic near you<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Browse the full library<\/h2>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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Downloadable resources\n<\/h2>\n <\/div>\n
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Impact of high PHE<\/a><\/h5>\n

Symptoms of high blood Phe levels vary from person to person. Learn how high blood Phe levels may be affecting you and what you can do about it.<\/p>\n

Clinical Discussion Guide <\/a><\/h5>\n

This tool can help you start the conversation with your healthcare team about finding the right PKU management plan for you.<\/p>\n

My PKU Symptom Tracker<\/a><\/h5>\n

PKU affects everyone differently\u2014use this questionnaire to note how its symptoms affect you.<\/p>\n

Collecting Blood Phe at Home<\/a><\/h5>\n

Learn how to collect your blood Phe at home.<\/p>\n

Recipes<\/a><\/h5>\n

Explore our collection of recipes specifically developed for people with PKU.<\/p>\n <\/div>\n <\/div>\n

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Interactive tools\n<\/h2>\n <\/div>\n
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Symptom Checker<\/a><\/h5>\n
Clinic Finder <\/a><\/h5>\n <\/div>\n <\/div>\n
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Connect with the PKU community\n<\/h2>\n <\/div>\n
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PKU Facebook Page <\/a><\/h5>\n
PKU Instagram Page <\/a><\/h5>\n
PKU & ME<\/a><\/h5>\n

Advocacy Groups<\/h4>\n

National and International Organizations<\/strong><\/h5>\n
National PKU Alliance (NPKUA)<\/a><\/h5>\n
PKU News<\/a><\/h5>\n
PKU News \u2013 How Much Phe<\/a><\/h5>\n
Regional and State Organizations<\/strong><\/h5>\n
Alabama PKU Foundation<\/a><\/h5>\n
Arizona Network for PKU and Allied Disorders (ANPAD)<\/a><\/h5>\n
California Coalition for PKU and Allied Disorders<\/a><\/h5>\n
CamPHEver Texas<\/a><\/h5>\n
Georgia PKU Connection<\/a><\/h5>\n
Intermountain PKU and Allied Disorders Association<\/a><\/h5>\n
Iowa PKU Foundation<\/a><\/h5>\n
Louisiana Metabolic Disorders Coalition<\/a><\/h5>\n
Maryland Alliance of PKU Families<\/a><\/h5>\n
Michigan PKU and Allied Disorders<\/a><\/h5>\n
Mid-Atlantic Connection for PKU and Allied Disorders (MACPAD)<\/a><\/h5>\n
Minnesota PKU Foundation<\/a><\/h5>\n
New England Connection for PKU and Allied Disorders (NECPAD)<\/a><\/h5>\n
PKU Northwest<\/a><\/h5>\n
PKU Organization of Illinois<\/a><\/h5>\n
PKU Wisconsin<\/a><\/h5>\n
Tennessee PKU Foundation<\/a><\/h5>\n <\/div>\n <\/div>\n
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Video resources\n<\/h2>\n <\/div>\n
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PKU YouTube Channel<\/a><\/h5>\n <\/div>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"acf":[],"yoast_head":"\nResource Library | Interactive Tools | Videos & Events | PKU - Phenylketonuria<\/title>\n<meta name=\"description\" content=\"Tools, resources & support for people with PKU. Download PKU resources, watch videos, use interactive tools, hear from people living with PKU. 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