{"id":60,"date":"2023-02-22T12:13:09","date_gmt":"2023-02-22T12:13:09","guid":{"rendered":"https:\/\/pkudsepatient-dev-001.azurewebsites.net\/en-us\/?page_id=60"},"modified":"2024-02-19T14:04:55","modified_gmt":"2024-02-19T14:04:55","slug":"living-with-pku","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-us\/living-with-pku\/","title":{"rendered":"Living with PKU"},"content":{"rendered":"
There are more ways to manage PKU than ever before. With PKU, experts recommend using every available option to manage PKU. No matter how long you\u2019ve been away from a clinic, many symptoms caused by high or unstable blood phenylalanine (Phe) levels can be improved. That\u2019s why it\u2019s so important to manage PKU for life\u2014because it will keep your brain healthy and focused.<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
High blood Phe levels can affect the way a person thinks, feels, and interacts with others. When Phe levels are high or uncontrolled, people with PKU can experience symptoms that occur slowly and have lasting impacts on the brain. Symptoms of high or unstable blood Phe levels include:<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
Find a clinic<\/a><\/p>\n <\/div>\n<\/div>\n\n Clinic discussion guide<\/a><\/p>\n <\/div>\n<\/div>\n\n View PKU resources<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n Going to a clinic will help you learn about options to help you manage PKU. Your care team can help you identify symptoms of high or unstable blood Phe levels, and they can help you determine if what you are experiencing is PKU-related.<\/p>\n Having an honest conversation with a PKU care team can help create a management plan that works within your everyday life. Be sure to be honest and open with your team about what\u2019s difficult, so that they can better help you.<\/p>\n <\/div>\n <\/figure>\n <\/div>\n
Tips to help you ask the right questions.<\/strong><\/h4>\n
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Get help and support with management.<\/strong><\/h4>\n
Discover your options.<\/h3>\n