{"id":58,"date":"2023-02-22T12:12:32","date_gmt":"2023-02-22T12:12:32","guid":{"rendered":"https:\/\/pku.biomarin.com\/en-us\/?page_id=58"},"modified":"2025-11-13T10:33:58","modified_gmt":"2025-11-13T10:33:58","slug":"adults-with-pku","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-us\/living-with-pku\/adults-with-pku\/","title":{"rendered":"Adults with PKU"},"content":{"rendered":"<div id=\"acf-block-63f7a8bde0a3d\" class=\"hero hero-no-overlay\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/11\/jonathan-header.png?v=0.85);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/10\/linear-background-e1759828787575.png?v=0.85);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t\t\t\t\t\t\t\t\t    <h1><span class=\"white-text\" style=\"color:white\">Adults with PKU<\/span>\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\n                <p class=\"inline-buttons\">\n                                                        <\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n<div id=\"acf-block-63f7a8bde0bf1\" class=\"block wrapped-content bg-band bg-band-white block-zero-top block-tight-bottom\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-63f7a8bde0cfe\" class=\"block-wysiwyg\">\n            <h2>Living a healthy life with PKU requires lifelong care<\/h2>\n<p>Managing your PKU with diet, medical food\/formula, and treatment protects your brain and physical health, while supporting your energy and mood. This can help you pursue your goals, and be your best self, now, and in the future.<\/p>\n    <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-68d41e979c060\" class=\"block split-content unequal-bias content-reverse content-align-top block-tight-bottom\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block first-block\">\n                                                                                                                                                                                                                                                                                    \n                                                                                                                \n                                                                                                                \n                                    \n                                    <figure>\n                                        <div class=\"image image-responsive image-rounded\">\n                                                                                            <div class=\"image-desktop\">\n                                                    <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/09\/icon-park-outline_picture-3.png?v=0.85\" alt=\"\" \/>                                                <\/div>\n                                                <div class=\"image-mobile\">\n                                                    <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/09\/icon-park-outline_picture-5.png?v=0.85\" alt=\"\" \/>                                                <\/div>\n                                                                                    <\/div>\n                                                                            <\/figure>\n                                                                                    <\/div>\n                    \n                                            <div class=\"content-block second-block\">\n                                                                                                <h2>Getting ahead of your symptoms<\/h2>\n<p>The symptoms of PKU can be hard to identify. Over time, they can have a serious impact on your brain. That\u2019s why check-ins at a clinic are so important.<\/p>\n<h3>Here are some key symptoms to look out for:<\/h3>\n<ul>\n<li>Social challenges (difficulty forming and maintaining relationships)<\/li>\n<li>Getting irritated easily<\/li>\n<li>Hard time focusing<\/li>\n<li>Difficulty with decision making, problem solving, and planning<\/li>\n<li>Depression<\/li>\n<\/ul>\n                                                                                    <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-63f7abbd3ecac\" class=\"block call-to-action call-to-action-no-overlay block-tight-top\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/10\/linear-background-e1759828787575.png?v=0.85);\">\n\t\t\t\t<div class=\"overlay\"><\/div>\n\t\t\t\t<div class=\"cta-content\">\n\t\t\t\t    \t\t\t\t\t<div class=\"cta-content-main\">\n                        <div class=\"content-block\">\n\t\t\t\t\t        \t\t\t\t\t        \t\t\t\t\t\t        <h2 class=\"h3\">Have you taken a break from PKU care?\n<\/h2>\n\t\t\t\t\t\t    \t\t\t\t\t\t    \t\t\t\t\t    <\/div>\n\t\t\t\t\t                                <div class=\"content-block\">\n                                <p><a class=\"button button-ghost button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/living-with-pku\/returning-to-care\/\" target=\"_self\">Get back on track<\/a><\/p>\n                            <\/div>\n\t\t\t\t\t                        <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-68d41e979c438\" class=\"block split-content equal-bias bg-band bg-band-white block-tight-top block-tight-bottom\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block first-block\">\n                                                                                                                                                                                                                                                <div class=\"video-poster\">\n\t\t\t                            <a class=\"modal-video permitted\" href=\"https:\/\/www.youtube.com\/watch?v=2f8EMvMvkj8\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/11\/Jonathan-PKU-1500x862.png);\">Play<\/a>\n\t\t                            <\/div>\n                                    \n                                                                                                                    \n                                                                                                                \n\t\t                                                                            <\/div>\n                    \n                                            <div class=\"content-block second-block\">\n                                                                                                <h2>The importance of<br \/>\nlong-term care<\/h2>\n<h3>Taking charge of your PKU<\/h3>\n<p>Watch this video to learn more about the impact of PKU and how you can manage it.<\/p>\n                                                                                    <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-68d41e979ca95\" class=\"block fact-box\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t    \t\t\t<div class=\"box\">\n\t\t\t\t\t\t\t\t    <h3>Setting yourself up for success\n<\/h3>\n\t\t\t\t\t\t\t\t\t\t\t\t    <p><strong>Managing your PKU effectively comes down to three key strategies:<\/strong><\/p>\n\t\t\t\t\t\t\t\t                    <div class=\"inner-box\">\n                        <div class=\"fact-details\">\n                                                                                                                                                            <div class=\"fact\">\n                                                                            <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/09\/Group-633639.svg\" alt=\"\" \/>                                                                                                                <h4>Building a strong support network\n<\/h4>\n                                                                                                                <p>Make sure your doctors know your goals, and help your family, friends, and coworkers understand how they can support your PKU management, so you can stay on track.<\/p>\n                                                                    <\/div>\n                                                                                                                                                            <div class=\"fact\">\n                                                                            <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/09\/target_icon.svg\" alt=\"\" \/>                                                                                                                <h4>Having a treatment plan that meets your goals\n<\/h4>\n                                                                                                                <p>Not all medications work the same way. If your Phe levels are still high, consider a treatment that may do more to help you manage your PKU.<\/p>\n                                                                    <\/div>\n                                                                                                                                                            <div class=\"fact\">\n                                                                            <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/09\/tick_icon.svg\" alt=\"\" \/>                                                                                                                <h4>Staying consistent\n<\/h4>\n                                                                                                                <p>Consistency with your PKU management is key to keeping Phe levels in your target range. Make PKU management part of your routine, so it fits seamlessly into your daily life.<\/p>\n                                                                    <\/div>\n                                                    <\/div>\n                    <\/div>\n                \t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-63f7a8bde0eec\" class=\"block cards cards-3-col block-tight-bottom\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"cards-title\">\n\t\t\t    \t\t\t\t    <h2>Supporting your next steps\n<\/h2>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<div class=\"cards-wrapper\">\n\t\t\t    \n<div id=\"acf-block-63f7a8bde135e\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n    \t    \n\n                    <img decoding=\"async\" class=\"card-image\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/10\/symptomchecker-2-e1761151043342.png?v=0.85\" alt=\"\" \/>        \n\t    <div class=\"card-content\">\n                            <h4>Is what you\u2019re feeling<br \/>\ndue to PKU?\n<\/h4>\n        \n                                                                                                            <p>Understand the impact<br \/>\nof PKU<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/about-pku\/is-it-pku-symptom-checker\/\" target=\"_self\">Try the Symptom Checker<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-63f7a8bde135e\" class=\"card card-fixed-button card-inner-image card-inner-image-small\" data-muted-autoplay=\"false\">\n        <div class=\"card-content\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/10\/ClinicFinder-e1760440181904.png?v=0.85\" alt=\"\" \/>                            <h4>Find the right PKU<br \/>\ncare for you\n<\/h4>\n        \n                                                                                                            <p>Locate a clinic or telehealth service near you<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/about-pku\/find-a-clinic\/\" target=\"_self\">Use the Clinic Finder<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-63f7a8bde135e\" class=\"card card-fixed-button card-inner-image card-inner-image-small\" data-muted-autoplay=\"false\">\n        <div class=\"card-content\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/10\/Doctor-Icon-e1760440214280.png?v=0.85\" alt=\"\" \/>                            <h4>There\u2019s more to managing<br \/>\nPKU than diet\n<\/h4>\n        \n                                                                                                            <p>Talk to your doctor about\u2028treatment options<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/about-pku\/managing-pku\/\" target=\"_self\">Learn about options<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-63f7abbd3ecac\" class=\"block call-to-action call-to-action-no-overlay block-tight-top block-tight-bottom\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/10\/linear-background-e1759828787575.png?v=0.85);\">\n\t\t\t\t<div class=\"overlay\"><\/div>\n\t\t\t\t<div class=\"cta-content\">\n\t\t\t\t    \t\t\t\t\t<div class=\"cta-content-main\">\n                        <div class=\"content-block\">\n\t\t\t\t\t        \t\t\t\t\t        \t\t\t\t\t\t        <h2 class=\"h3\">Explore tools and resources to support your PKU journey\n<\/h2>\n\t\t\t\t\t\t    \t\t\t\t\t\t    \t\t\t\t\t    <\/div>\n\t\t\t\t\t                                <div class=\"content-block\">\n                                <p><a class=\"button button-ghost button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/resources\/\" target=\"_self\">See all resources<\/a><\/p>\n                            <\/div>\n\t\t\t\t\t                        <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-68d420b488ced\" class=\"block split-content unequal-bias bg-band bg-band-white block-zero-bottom\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block first-block\">\n                                                                                                                                                                                                                                                                                    \n                                    \n                                                                                                                \n                                    \n                                    <figure>\n                                        <div class=\"image image-rounded\">\n                                                                                            <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/09\/pkume-logo-1-1.png?v=0.85\" alt=\"\" \/>                                                                                    <\/div>\n                                                                            <\/figure>\n                                                                                    <\/div>\n                    \n                                            <div class=\"content-block second-block\">\n                                                                                                <h3><strong>Ongoing support to move you forward on your journey<\/strong><\/h3>\n<p>PKU &amp; ME is designed around you\u2014your questions, your challenges, and your long-term goals. With this program, you&#8217;ll receive emails about managing PKU so you can feel more confident with the next steps of your journey. The program includes:<\/p>\n<ul>\n<li>Advice on PKU management<\/li>\n<li>PKU-friendly recipes<\/li>\n<li>Connecting with others in the PKU community<\/li>\n<li>The latest news about PKU<\/li>\n<\/ul>\n                                                                                                                                                                                                                                                                                                                                                                                                                                                                        <p><a class=\"button button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/pku-me-registration\/\" target=\"_self\">Enroll now<\/a><\/p>\n                                                                                                                        <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":4015,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-58","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Adults with PKU - BioMarin PKU DSE Patient EN-US<\/title>\n<meta name=\"description\" content=\"Many symptoms of high or unstable blood phenylalanine (Phe) levels can be improved, even if you&#039;ve been away from the clinic or off management. You can improve your phenylketonuria (PKU) management by considering available options for lowering your blood Phe levels.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/pku.biomarin.com\/en-us\/living-with-pku\/adults-with-pku\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Adults with PKU - BioMarin PKU DSE Patient EN-US\" \/>\n<meta property=\"og:description\" content=\"Many symptoms of high or unstable blood phenylalanine (Phe) levels can be improved, even if you&#039;ve been away from the clinic or off management. You can improve your phenylketonuria (PKU) management by considering available options for lowering your blood Phe levels.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/pku.biomarin.com\/en-us\/living-with-pku\/adults-with-pku\/\" \/>\n<meta property=\"og:site_name\" content=\"BioMarin PKU DSE Patient EN-US\" \/>\n<meta property=\"article:modified_time\" content=\"2025-11-13T10:33:58+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/pku.biomarin.com\/en-us\/living-with-pku\/adults-with-pku\/\",\"url\":\"https:\/\/pku.biomarin.com\/en-us\/living-with-pku\/adults-with-pku\/\",\"name\":\"Adults with PKU - BioMarin PKU DSE Patient EN-US\",\"isPartOf\":{\"@id\":\"https:\/\/pku.biomarin.com\/en-us\/#website\"},\"datePublished\":\"2023-02-22T12:12:32+00:00\",\"dateModified\":\"2025-11-13T10:33:58+00:00\",\"description\":\"Many symptoms of high or unstable blood phenylalanine (Phe) levels can be improved, even if you've been away from the clinic or off management. 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