{"id":56,"date":"2023-02-22T12:10:55","date_gmt":"2023-02-22T12:10:55","guid":{"rendered":"https:\/\/pkudsepatient-dev-001.azurewebsites.net\/en-us\/?page_id=56"},"modified":"2024-02-14T19:34:43","modified_gmt":"2024-02-14T19:34:43","slug":"sticking-with-pku-management","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-us\/sticking-with-pku-management\/","title":{"rendered":"Sticking with PKU management"},"content":{"rendered":"
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Sticking with PKU management\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n
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Ask yourself: What\u2019s PKU got to do with this? <\/h2>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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Make a plan for PKU management.<\/h3>\n

Managing PKU starts with understanding that you have to manage PKU for life. You only get one brain, and unmanaged PKU can cause permanent damage. That\u2019s why it\u2019s so important to develop a routine that you feel comfortable with now, and that you can continue to follow as you get older.<\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Who has your back?<\/h3>\n

You may not even realize you are experiencing symptoms of high or unstable blood Phe levels, but the people around you might. Try talking to your family and friends about your PKU symptoms. Make your friends a part of your care team by sharing symptoms with them and helping them to understand why PKU management is important.<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n

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Get connected with people who “get it.”<\/h4>\n

Building your PKU community can help you learn how others manage their PKU.<\/p>\n

Join the community <\/a><\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Prepare for your next clinic visit.\n<\/h4>\n \n \n <\/div>\n
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Symptom checker <\/a><\/p>\n <\/div>\n<\/div>\n\n

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Tips to help you talk to your care team.\n<\/h4>\n \n \n <\/div>\n
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Discussion guide <\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"acf":[],"yoast_head":"\nStaying Active with PKU Event | PKU - Phenylketonuria<\/title>\n<meta name=\"description\" content=\"Managing PKU starts with understanding that you have to manage PKU for life. Talk to friends and family about your PKU symptoms. Connect with the PKU community. Use the symptom checker to prepare for your next clinic visit. 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