{"id":54,"date":"2023-02-22T12:10:17","date_gmt":"2023-02-22T12:10:17","guid":{"rendered":"https:\/\/pkudsepatient-dev-001.azurewebsites.net\/en-us\/?page_id=54"},"modified":"2024-09-20T17:59:32","modified_gmt":"2024-09-20T17:59:32","slug":"taking-charge-of-your-pku","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-us\/taking-charge-of-your-pku\/","title":{"rendered":"Taking charge of your PKU"},"content":{"rendered":"
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Taking charge of your PKU\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n
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Having PKU is not easy. Your care team can help.<\/h2>\n

It\u2019s true, living with PKU has a lot of challenges, and it needs to be managed for your entire life. You know this\u2014you\u2019ve been managing PKU your entire life. But you can\u2019t do it alone, and you shouldn\u2019t have to. So why not have an entire team who has your back? You can manage your PKU with resources and support from your care team.<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n

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Keep in mind<\/h3>\n

Unmanaged PKU affects the way you think, feel, and act.<\/strong>
\nHigh or unstable blood phenylalanine (Phe) levels can damage the brain and make many aspects of everyday life more difficult, including building relationships, planning for an event or trip, and completing tasks at home, work, or school.<\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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“I don’t always notice when my Phe levels are high, but the people around me do.”<\/h3>\n

See why and how others made their journey back to a PKU clinic after not managing their PKU. <\/p>\n <\/div>\n \n

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Start a conversation.<\/h3>\n

The best way to keep your brain healthy and focused is to own your PKU management. Having an honest conversation with your care team is important for lifelong PKU management.<\/p>\n