{"id":48,"date":"2023-02-22T12:06:27","date_gmt":"2023-02-22T12:06:27","guid":{"rendered":"https:\/\/pkudsepatient-dev-001.azurewebsites.net\/en-us\/?page_id=48"},"modified":"2024-07-08T22:40:01","modified_gmt":"2024-07-08T22:40:01","slug":"your-child-and-pku","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-us\/your-child-and-pku\/","title":{"rendered":"Your child and PKU"},"content":{"rendered":"
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Your child and PKU\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n
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A healthy routine is important for both you and your child living with PKU.<\/h2>\n

Start healthy routines while your child is young, and let them learn from your example. This can help you teach your child the best ways to care for their PKU\u2014because it will become their job when they grow older.<\/p>\n

Set your child up for success with this 3-step approach to managing PKU.<\/h3>\n

Habits are at the center of knowledge, skills, and drive, because forming habits early<\/strong> can help you and your child address challenges with treatment right away.<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n

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Provide knowledge<\/h4>\n

What to do and why<\/p>\n <\/div>\n<\/div>\n\n

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Inspire drive<\/h4>\n

Want to do it<\/p>\n <\/div>\n<\/div>\n\n

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Teach skills<\/h4>\n

How to do it<\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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“Lifelong management of PKU is so important, because it affects her brain”<\/h3>\n

See how PKU families are developing healthy habits and routines<\/p>\n <\/div>\n \n

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Work closely with your PKU care team.<\/h4>\n

Your care team will help you determine what\u2019s most important for managing PKU, as this can be different for everyone. Set yourself and your family up for success by creating a PKU care plan tailored to your individual needs.<\/p>\n

Start today with these four healthy habits<\/a><\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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When a teacher or another parent asks about PKU, what do you say?\n<\/h2>\n\t\t\t\t\t\t \t\t\t\t\t\t \t\t\t\t\t\t

Sure, it might be easy to describe PKU as a diet thing, but the truth is\u2014it\u2019s really a brain thing.<\/p>\n

So next time, try explaining the impact that PKU has on a developing brain. This will help others understand how important it is to pay attention to the foods your child is eating.<\/p>\n\t\t\t\t\t\t \t\t\t\t\t <\/div>\n\t\t\t\t\t

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Download a discussion guide<\/a><\/p>\n <\/div>\n\t\t\t\t\t <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Planning for the future with PKU.\n<\/h4>\n \n \n <\/div>\n
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Get started now <\/a><\/p>\n <\/div>\n<\/div>\n\n

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Build your circle of support.\n<\/h4>\n \n \n <\/div>\n
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Connect on social media<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Upcoming events\n<\/h4>\n \n

Educational PKU events are a great place to connect with the community and can provide access to useful information as well as to other people who are caring for children with PKU. You can attend an event in person or participate online in a virtual PKU event.<\/p>\n \n <\/div>\n

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Find a PKU event<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-48","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nCaring for a Child With PKU | PKU - Phenylketonuria<\/title>\n<meta name=\"description\" content=\"A healthy routine is important for both you and your child living with PKU. Set your child up for success with this 3-step approach to managing PKU. Download the PKU clinic discussion guide. Connect with others in the PKU community. 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