{"id":3971,"date":"2025-09-25T09:54:36","date_gmt":"2025-09-25T09:54:36","guid":{"rendered":"https:\/\/pku.biomarin.com\/en-us\/?page_id=3971"},"modified":"2025-11-13T16:09:22","modified_gmt":"2025-11-13T16:09:22","slug":"caregivers-and-parents","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-us\/caring-for-a-loved-one\/caregivers-and-parents\/","title":{"rendered":"Caregivers and Parents"},"content":{"rendered":"<div id=\"acf-block-63f764fcaed81\" class=\"hero hero-no-overlay\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/11\/ashton-header.png?v=0.85);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/10\/linear-background-e1759828787575.png?v=0.85);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t\t\t\t\t\t\t\t\t    <h1><span class=\"white-text\" style=\"color:white\">Caregivers and parents<\/span>\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\n                <p class=\"inline-buttons\">\n                                                        <\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n<div id=\"acf-block-63f764fcaef11\" class=\"block wrapped-content bg-band bg-band-white block-zero-top\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-63f764fcaf002\" class=\"block-wysiwyg\">\n            <h2>Protecting the brain from high Phe levels is crucial<\/h2>\n<p>Caring for someone with PKU\u2014whether a child, teen, or adult\u2014comes with unique challenges and responsibilities. As a caregiver, you play an essential role in supporting your loved one\u2019s health.<\/p>\n<p><strong>Explore tools, resources, and community support to help you gain the knowledge and confidence you need to take care of your loved one.<\/strong><\/p>\n    <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-68d512815cd7b\" class=\"block split-content equal-bias block-tight-bottom\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block first-block\">\n                                                                                                                                                                                                                                                <div class=\"video-poster\">\n\t\t\t                            <a class=\"modal-video permitted\" href=\"https:\/\/www.youtube.com\/watch?v=eeSmmIrF6eg\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/10\/Screenshot-2025-10-22-at-11.34.53-AM-1500x851.png);\">Play<\/a>\n\t\t                            <\/div>\n                                    \n                                                                                                                    \n                                                                                                                \n\t\t                                                                            <\/div>\n                    \n                                            <div class=\"content-block second-block\">\n                                                                                                <h2>Hear from a PKU parent<\/h2>\n<p>Discover how Joy and her family learned the importance of starting treatment early and instilling healthy habits for PKU management in their children.<\/p>\n                                                                                    <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-68d512815cda6\" class=\"block wrapped-content\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<figure id=\"acf-block-68d512815d0fb\">\n    <div class=\"image image-responsive image-rounded image-align-left\">\n                    <div class=\"image-desktop\">\n\t\t\t    <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/09\/PKU-JoyQuote-1.png?v=0.85\" alt=\"\" \/>\t\t\t<\/div>\n\t\t\t<div class=\"image-mobile\">\n\t\t\t    <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/09\/PKU-JoyQuote-Mobile-1-1.png?v=0.85\" alt=\"\" \/>\t\t\t<\/div>\n            <\/div>\n    <\/figure>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-63f764fcaf1c9\" class=\"block cards cards-2-col bg-band bg-band-alternative\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"cards-title\">\n\t\t\t    \t\t\t\t    <h2>Being there for your child with PKU\n<\/h2>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<div class=\"cards-wrapper\">\n\t\t\t    \n<div id=\"acf-block-63f764fcaf5c5\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n    \t    \n\n                    <img decoding=\"async\" class=\"card-image\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/09\/Screenshot-2025-09-02-at-5.36.07\u202fPM-1.png?v=0.85\" alt=\"\" \/>        \n\t    <div class=\"card-content\">\n                            <h4>Parents of teens\n<\/h4>\n        \n                                                                                                                                                                                                                                                                                    \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/caring-for-a-loved-one\/parents-of-teens\/\" target=\"_self\">Preparing teens for life with PKU<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-63f764fcaf643\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n    \t    \n\n                    <img decoding=\"async\" class=\"card-image\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/09\/Screenshot-2025-09-02-at-6.08.24\u202fPM-1.png?v=0.85\" alt=\"\" \/>        \n\t    <div class=\"card-content\">\n                            <h4>Parents of young children\n<\/h4>\n        \n                                                                                                                                                                                                                                                                                    \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/caring-for-a-loved-one\/parents-of-young-children\/\" target=\"_self\">Healthy routines for children with PKU<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-63f7a8bde0eec\" class=\"block cards cards-3-col block-tight-bottom\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"cards-title\">\n\t\t\t    \t\t\t\t    <h2>Supporting your next steps\n<\/h2>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<div class=\"cards-wrapper\">\n\t\t\t    \n<div id=\"acf-block-63f7a8bde135e\" class=\"card card-fixed-button card-inner-image card-inner-image-small\" data-muted-autoplay=\"false\">\n        <div class=\"card-content\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/10\/Learn-e1760440713967.png?v=0.85\" alt=\"\" \/>                            <h4>Learn from<br \/>\nexperts\n<\/h4>\n        \n                                                                                                            <p>Get advice from specialists on better living with PKU<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/events\/\" target=\"_self\">Find an event<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-63f7a8bde135e\" class=\"card card-fixed-button card-inner-image card-inner-image-small\" data-muted-autoplay=\"false\">\n        <div class=\"card-content\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/10\/Community-e1760440773625.png?v=0.85\" alt=\"\" \/>                            <h4>Get support from<br \/>\nthe community\n<\/h4>\n        \n                                                                                                            <p>Build a circle of support with others who understand life with PKU<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/upcoming-events\/pku-community\/\" target=\"_self\">Connect with others<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-63f7a8bde135e\" class=\"card card-fixed-button card-inner-image card-inner-image-small\" data-muted-autoplay=\"false\">\n        <div class=\"card-content\">\n                    <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/10\/Diet-e1760440882860.png?v=0.85\" alt=\"\" \/>                            <h4>Discover PKU-friendly<br \/>\nrecipes\n<\/h4>\n        \n                                                                                                            <p>From salads to scones, there\u2019s something for everyone<\/p>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-text button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/resources\/recipes\/\" target=\"_self\">Explore recipes<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-63f7abbd3ecac\" class=\"block call-to-action call-to-action-no-overlay block-tight-top block-tight-bottom\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/10\/linear-background-e1759828787575.png?v=0.85);\">\n\t\t\t\t<div class=\"overlay\"><\/div>\n\t\t\t\t<div class=\"cta-content\">\n\t\t\t\t    \t\t\t\t\t<div class=\"cta-content-main\">\n                        <div class=\"content-block\">\n\t\t\t\t\t        \t\t\t\t\t        \t\t\t\t\t\t        <h2 class=\"h3\">Explore helpful PKU resources\n<\/h2>\n\t\t\t\t\t\t    \t\t\t\t\t\t    \t\t\t\t\t    <\/div>\n\t\t\t\t\t                                <div class=\"content-block\">\n                                <p><a class=\"button button-ghost button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/resources\/\" target=\"_self\">See all resources<\/a><\/p>\n                            <\/div>\n\t\t\t\t\t                        <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-68d420b488ced\" class=\"block split-content unequal-bias bg-band bg-band-white block-zero-bottom\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block first-block\">\n                                                                                                                                                                                                                                                                                    \n                                    \n                                                                                                                \n                                    \n                                    <figure>\n                                        <div class=\"image image-rounded\">\n                                                                                            <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-us\/wp-content\/uploads\/sites\/7\/2025\/09\/pkume-logo-1-1.png?v=0.85\" alt=\"\" \/>                                                                                    <\/div>\n                                                                            <\/figure>\n                                                                                    <\/div>\n                    \n                                            <div class=\"content-block second-block\">\n                                                                                                <h3><strong>Ongoing support to move you forward on your journey<\/strong><\/h3>\n<p>PKU &amp; ME is designed around you\u2014your questions, your challenges, and your long-term goals. With this program, you&#8217;ll receive emails about managing PKU so you can feel more confident with the next steps of your journey. The program includes:<\/p>\n<ul>\n<li>Advice on PKU management<\/li>\n<li>PKU-friendly recipes<\/li>\n<li>Connecting with others in the PKU community<\/li>\n<li>The latest news about PKU<\/li>\n<\/ul>\n                                                                                                                                                                                                                                                                                                                                                                                                                                                                        <p><a class=\"button button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-us\/pku-me-registration\/\" target=\"_self\">Enroll now<\/a><\/p>\n                                                                                                                        <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":4019,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-3971","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Caregivers and Parents - BioMarin PKU DSE Patient EN-US<\/title>\n<meta name=\"description\" content=\"Protect a developing brain from high blood phenylalanine (Phe). Help your loved one manage phenylketonuria (PKU) through a diet low in Phe and regular visits with a PKU clinic. With proper management of blood Phe levels, a child with PKU can live a healthy life. PKU experts recommend starting management within the first week of life, using every available option, and continuing management through life.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/pku.biomarin.com\/en-us\/caring-for-a-loved-one\/caregivers-and-parents\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Caregivers and Parents - BioMarin PKU DSE Patient EN-US\" \/>\n<meta property=\"og:description\" content=\"Protect a developing brain from high blood phenylalanine (Phe). Help your loved one manage phenylketonuria (PKU) through a diet low in Phe and regular visits with a PKU clinic. With proper management of blood Phe levels, a child with PKU can live a healthy life. PKU experts recommend starting management within the first week of life, using every available option, and continuing management through life.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/pku.biomarin.com\/en-us\/caring-for-a-loved-one\/caregivers-and-parents\/\" \/>\n<meta property=\"og:site_name\" content=\"BioMarin PKU DSE Patient EN-US\" \/>\n<meta property=\"article:modified_time\" content=\"2025-11-13T16:09:22+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/pku.biomarin.com\/en-us\/caring-for-a-loved-one\/caregivers-and-parents\/\",\"url\":\"https:\/\/pku.biomarin.com\/en-us\/caring-for-a-loved-one\/caregivers-and-parents\/\",\"name\":\"Caregivers and Parents - BioMarin PKU DSE Patient EN-US\",\"isPartOf\":{\"@id\":\"https:\/\/pku.biomarin.com\/en-us\/#website\"},\"datePublished\":\"2025-09-25T09:54:36+00:00\",\"dateModified\":\"2025-11-13T16:09:22+00:00\",\"description\":\"Protect a developing brain from high blood phenylalanine (Phe). 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