{"id":60,"date":"2023-02-22T12:13:09","date_gmt":"2023-02-22T12:13:09","guid":{"rendered":"https:\/\/pkudsepatient-dev-001.azurewebsites.net\/en-gb\/?page_id=60"},"modified":"2024-04-04T13:14:51","modified_gmt":"2024-04-04T13:14:51","slug":"living-with-pku","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-gb\/living-with-pku\/","title":{"rendered":"Living with PKU"},"content":{"rendered":"
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Living with PKU\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\n

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It\u2019s never too late to get back to care.<\/h2>\n

Many of the symptoms you may be feeling may be caused by high or unstable blood Phe levels. But you have the power to keep your blood Phe levels under control and make the most of your PKU management plan. You can start by restarting your PKU management at a PKU clinic.<\/p>\n

We now know that PKU must be managed for life, which may be different than what you have been told in the past. So, no matter how long you\u2019ve been off diet or away from the clinic, you may be able to see improvements in your symptoms.<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n

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When a friend or colleague asks about PKU, what do you say?\n<\/h2>\n\t\t\t\t\t\t \t\t\t\t\t\t \t\t\t\t\t\t

It might be easy to describe PKU as a dietary disorder, but PKU can have a big effect on the brain too. So next time someone asks, tell them about the impact that PKU has on your brain. This will help them understand why it is so important to pay attention to the foods you eat.<\/p>\n\t\t\t\t\t\t \t\t\t\t\t <\/div>\n\t\t\t\t\t

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Learn how PKU impacts the brain<\/a><\/p>\n <\/div>\n\t\t\t\t\t <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Keep in mind<\/h2>\n

The symptoms of PKU can be difficult to identify and can happen slowly over time. And they can have a serious impact on your brain. That\u2019s why check-ins with a clinic are so important.<\/p>\n

If you have been feeling foggy, confused or anxious lately, it could be your PKU.<\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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How do you know if it\u2019s PKU?\n<\/h3>\n

Try the symptom diary<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-60","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nLiving with PKU - BioMarin PKU DSE Patient EN-GB<\/title>\n<meta name=\"description\" content=\"Adults with PKU. Caring for phenylketonuria (PKU) as an adult. Keep your blood phenylalanine (Phe) levels under control and make the most of your PKU management plan. Restart your PKU management at a PKU clinic. PKU must be managed for life, which may be different than what you have been told in the past. No matter how long you've been off diet or away from the clinic, you may be able to see improvements in your symptoms if you return to PKU care. 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