{"id":56,"date":"2023-02-22T12:10:55","date_gmt":"2023-02-22T12:10:55","guid":{"rendered":"https:\/\/pkudsepatient-dev-001.azurewebsites.net\/en-gb\/?page_id=56"},"modified":"2024-08-14T11:13:51","modified_gmt":"2024-08-14T11:13:51","slug":"sticking-with-pku-management","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-gb\/sticking-with-pku-management\/","title":{"rendered":"Sticking with PKU Management"},"content":{"rendered":"
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Sticking with PKU Management\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\n

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Ask yourself: What\u2019s PKU got to do with this? <\/h2>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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Make a plan for PKU management.<\/h2>\n

Managing PKU starts with understanding that you have to manage PKU for life. You only get one brain, and unmanaged PKU can cause permanent damage. That\u2019s why it\u2019s so important to develop a routine that you feel comfortable with now, and that you can continue to follow as you get older.<\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Who can help?<\/h2>\n

You may not even realise you are experiencing symptoms of high or unstable blood Phe levels, but the people around you might. Try talking to your family and friends about your PKU symptoms. Make your friends a part of your care team by sharing symptoms with them and helping them to understand why PKU management is important.<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n

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Symptoms don’t always occur immediately after eating protein.\n<\/h4>\n \n \n <\/div>\n
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Symptom diary<\/a><\/p>\n <\/div>\n<\/div>\n\n

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Tips to help you talk to your care team.\n<\/h4>\n \n \n <\/div>\n
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Discussion guide<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-56","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nSticking with PKU Management - BioMarin PKU DSE Patient EN-GB<\/title>\n<meta name=\"description\" content=\"Unmanaged phenylketonuria (PKU) can cause permanent damage. That's why it's so important to develop a routine that you feel comfortable with now, and that you can continue to follow as you get older. Talk to friends and family about your PKU symptoms. Make friends a part of your care team. Share symptoms. Help them understand why PKU management is important. 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