{"id":54,"date":"2023-02-22T12:10:17","date_gmt":"2023-02-22T12:10:17","guid":{"rendered":"https:\/\/pkudsepatient-dev-001.azurewebsites.net\/en-gb\/?page_id=54"},"modified":"2024-02-07T23:35:58","modified_gmt":"2024-02-07T23:35:58","slug":"taking-charge-of-your-pku","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-gb\/taking-charge-of-your-pku\/","title":{"rendered":"Taking Charge of your PKU"},"content":{"rendered":"<div id=\"acf-block-63f79647dac98\" class=\"hero hero-no-overlay\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-gb\/wp-content\/uploads\/sites\/4\/2023\/03\/Group-110-scaled-e1678703759379-2000x435.jpg);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-gb\/wp-content\/uploads\/sites\/4\/2023\/02\/pku-balloon-hero-mobile-830x800.jpg);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t\t\t\t\t\t\t\t\t    <h1>Taking Charge of your PKU\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\n                <p class=\"inline-buttons\">\n                                                        <\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n<div id=\"acf-block-63f79647dae3a\" class=\"block wrapped-content\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-63f79647dbefe\" class=\"block-wysiwyg\">\n            <h2>Having PKU is not easy. Your care team can help.<\/h2>\n<p>It\u2019s true, living with PKU has a lot of challenges and it needs to be managed for your entire life. But remember that you don&#8217;t have to do it alone &#8211; resources and support from your care team can help you to manage your PKU.<\/p>\n    <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-63f79647dc884\" class=\"block split-content equal-bias bottom-border block-tight-top block-tight-bottom\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block first-block\">\n                                                                                                                                                                                                                                                                                    \n                                    \n                                                                                                                \n                                    \n                                    <figure>\n                                        <div class=\"image image-rounded\">\n                                                                                            <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-gb\/wp-content\/uploads\/sites\/4\/2023\/10\/desktop_KeepInMind.jpg?v=0.85\" alt=\"Teenager, anxious foggy and forgetful\" \/>                                                                                    <\/div>\n                                                                            <\/figure>\n                                                                                    <\/div>\n                    \n                                            <div class=\"content-block second-block\">\n                                                                                                <h2>Keep in mind<\/h2>\n<p><strong>Unmanaged PKU affects the way you think, feel, and act.<\/strong><br \/>\nHigh or unstable blood Phe levels can damage the brain and make many aspects of everyday life more difficult, including building relationships, planning for an event or trip and completing tasks at home, work, or school.<\/p>\n                                                                                    <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-63f79a65a539f\" class=\"block split-content equal-bias content-reverse bottom-border block-tight-top block-tight-bottom\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block first-block\">\n                                                                                                                                                                                                                                                                                    \n                                    \n                                                                                                                \n                                    \n                                    <figure>\n                                        <div class=\"image image-rounded\">\n                                                                                            <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-gb\/wp-content\/uploads\/sites\/4\/2023\/10\/istockphoto-863348696-612x612-1.jpg?v=0.85\" alt=\"Doctor talking to teenager in surgery\" \/>                                                                                    <\/div>\n                                                                            <\/figure>\n                                                                                    <\/div>\n                    \n                                            <div class=\"content-block second-block\">\n                                                                                                <h2>Start a conversation.<\/h2>\n<p>The recommended way to keep your brain healthy and focused is to own your PKU management. Having an honest conversation with your care team is important for lifelong PKU management.<\/p>\n<ul>\n<li><strong>Sticking to a PKU-friendly diet<\/strong><\/li>\n<li><strong>Taking your supplements<\/strong><\/li>\n<li><strong>Monitoring blood Phe levels<\/strong><\/li>\n<li><strong>Regular visits to your PKU clinic<\/strong><\/li>\n<\/ul>\n                                                                                    <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-63f79d9521713\" class=\"block call-to-action block-tight-top block-tight-bottom\">\n    <div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"box\" style=\"\">\n\t\t\t\t<div class=\"overlay\"><\/div>\n\t\t\t\t<div class=\"cta-content\">\n\t\t\t\t    \t\t\t\t\t<div class=\"cta-content-main\">\n                        <div class=\"content-block\">\n\t\t\t\t\t        \t\t\t\t\t        \t\t\t\t\t\t        <h2 class=\"h3\">When a friend or teacher asks about PKU, what do you say?\n<\/h2>\n\t\t\t\t\t\t    \t\t\t\t\t\t    \t\t\t\t\t\t        <p>It might be easy to describe PKU as a dietary disorder, but PKU can have a big effect on the brain too. Next time, try explaining the impact that PKU has on a developing brain. This will help others understand how important it is to pay attention to the foods you are eating.<\/p>\n\t\t\t\t\t\t    \t\t\t\t\t    <\/div>\n\t\t\t\t\t                                <div class=\"content-block\">\n                                <p><a class=\"button button-ghost button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-gb\/phe-in-the-brain\/\" target=\"_self\">Learn how PKU impacts the brain<\/a><\/p>\n                            <\/div>\n\t\t\t\t\t                        <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-63f79d95230e0\" class=\"block cards cards-2-col block-zero-top block-tight-bottom\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"cards-title\">\n\t\t\t    \t\t\t\t\t\t\t<\/div>\n\t\t\t<div class=\"cards-wrapper\">\n\t\t\t    \n<div id=\"acf-block-63f79d952357c\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n    \t    \n\n                    <img decoding=\"async\" class=\"card-image\" src=\"https:\/\/pku.biomarin.com\/en-gb\/wp-content\/uploads\/sites\/4\/2023\/04\/Management.png?v=0.85\" alt=\"Management\" \/>        \n\t    <div class=\"card-content\">\n                \n                                                                                                            <h4>Sticking with management is hard, but it\u2019s important.<\/h4>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-gb\/sticking-with-pku-management\/\" target=\"_self\">Develop your management plan <\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-63f79d9523613\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n    \t    \n\n                    <img decoding=\"async\" class=\"card-image\" src=\"https:\/\/pku.biomarin.com\/en-gb\/wp-content\/uploads\/sites\/4\/2023\/04\/Commitment.png?v=0.85\" alt=\"Commitment\" \/>        \n\t    <div class=\"card-content\">\n                \n                                                                                                            <h4>PKU involves a lifelong commitment to care.<\/h4>\n                                                                                                                                                                                                                                                                        \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-gb\/pku-guidelines\/\" target=\"_self\">Protect your brain<\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-54","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Taking Charge of your PKU - BioMarin PKU DSE Patient EN-GB<\/title>\n<meta name=\"description\" content=\"Living with phenylketonuria (PKU) has a lot of challenges, and it needs to be managed for your entire life. 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