{"id":40,"date":"2023-02-22T12:02:24","date_gmt":"2023-02-22T12:02:24","guid":{"rendered":"https:\/\/pkudsepatient-dev-001.azurewebsites.net\/en-gb\/?page_id=40"},"modified":"2024-08-14T11:05:17","modified_gmt":"2024-08-14T11:05:17","slug":"managing-pku","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-gb\/managing-pku\/","title":{"rendered":"Managing PKU"},"content":{"rendered":"
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Managing PKU\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\n

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You can prevent many symptoms of PKU by monitoring the foods you eat. <\/h2>\n

A PKU diet is not an easy diet to maintain, but it is important in order to protect your brain. That\u2019s because toxic buildup of Phe in the brain can cause physical changes that lead to intellectual and behavioural problems.<\/p>\n

Although some symptoms are permanent, many can be improved if blood Phe levels come back under control.<\/p>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n

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You may have heard something different in the past, but experts now agree that PKU must be managed for life.<\/h2>\n

Start PKU management early.<\/strong> PKU treatment should be started within 10 days after birth.<\/p>\n

Manage PKU for life.<\/strong> PKU is a lifelong condition that requires lifelong care.<\/p>\n <\/div>\n \t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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The impact of high or unstable blood Phe levels can be managed, and in some cases, symptoms can be improved.<\/h2>\n <\/div>\n <\/div>\n <\/div>\n<\/div>\n\n
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Start monitoring your blood Phe levels.<\/strong><\/h4>\n

Download and try using this Phe tracking information sheet<\/a><\/p>\n <\/div>\n<\/div>\n\n

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Have an honest discussion with your care team.<\/strong><\/h4>\n

Try this PKU Clinic Discussion Guide to help your conversation along<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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With a diet low in Phe and other
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\nPhe levels low and stable.\n<\/h2>\n\t\t\t\t\t\t \t\t\t\t\t\t \t\t\t\t\t\t

Experts recommend that blood Phe should be maintained between
\n120 and 360 \u00b5mol\/L in children <12 years old and pregnant women,
\nand between 120 and 600 \u00b5mol\/L in people older than 12 years.
\nEveryone with PKU is different, and your care team will help you
\ndetermine the right target range for you.<\/p>\n\t\t\t\t\t\t \t\t\t\t\t <\/div>\n\t\t\t\t\t <\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n

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Check out these delicious low-Phe recipes.\n<\/h3>\n

See recipes<\/a><\/p>\n <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-40","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nManaging PKU - BioMarin PKU DSE Patient EN-GB<\/title>\n<meta name=\"description\" content=\"A phenylketonuria (PKU) diet is important to protect your brain. That's because toxic buildup of phenylalanine (Phe) in the brain can cause physical changes that lead to intellectual and behavioral problems. Some symptoms are permanent, but many can be improved if blood Phe levels come back under control. Start PKU management early. Manage PKU for life. PKU is a lifelong condition that requires lifelong care. Start monitoring your blood Phe levels. Visit a PKU clinic and talk to a care team. Have an honest discussion with your care team. Develop a routine that makes PKU management part of your day.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/pku.biomarin.com\/en-gb\/managing-pku\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Managing PKU - BioMarin PKU DSE Patient EN-GB\" \/>\n<meta property=\"og:description\" content=\"A phenylketonuria (PKU) diet is important to protect your brain. That's because toxic buildup of phenylalanine (Phe) in the brain can cause physical changes that lead to intellectual and behavioral problems. Some symptoms are permanent, but many can be improved if blood Phe levels come back under control. Start PKU management early. Manage PKU for life. PKU is a lifelong condition that requires lifelong care. Start monitoring your blood Phe levels. Visit a PKU clinic and talk to a care team. Have an honest discussion with your care team. Develop a routine that makes PKU management part of your day.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/pku.biomarin.com\/en-gb\/managing-pku\/\" \/>\n<meta property=\"og:site_name\" content=\"BioMarin PKU DSE Patient EN-GB\" \/>\n<meta property=\"article:modified_time\" content=\"2024-08-14T11:05:17+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/pku.biomarin.com\\\/en-gb\\\/managing-pku\\\/\",\"url\":\"https:\\\/\\\/pku.biomarin.com\\\/en-gb\\\/managing-pku\\\/\",\"name\":\"Managing PKU - BioMarin PKU DSE Patient EN-GB\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/pku.biomarin.com\\\/en-gb\\\/#website\"},\"datePublished\":\"2023-02-22T12:02:24+00:00\",\"dateModified\":\"2024-08-14T11:05:17+00:00\",\"description\":\"A phenylketonuria (PKU) diet is important to protect your brain. 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