{"id":1467,"date":"2023-02-24T17:37:40","date_gmt":"2023-02-24T17:37:40","guid":{"rendered":"https:\/\/pkudsepatient-dev-001.azurewebsites.net\/en-gb\/?page_id=1467"},"modified":"2024-04-04T12:50:19","modified_gmt":"2024-04-04T12:50:19","slug":"pku-guidelines","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-gb\/pku-guidelines\/","title":{"rendered":"PKU Guidelines"},"content":{"rendered":"<div id=\"acf-block-63f8f80914b60\" class=\"hero hero-no-overlay\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-gb\/wp-content\/uploads\/sites\/4\/2023\/03\/Group-110-scaled-e1678703759379-2000x435.jpg);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-gb\/wp-content\/uploads\/sites\/4\/2023\/02\/pku-balloon-hero-mobile-830x800.jpg);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t\t\t\t\t\t\t\t\t    <h1>PKU Guidelines &amp; Standards \n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\n                <p class=\"inline-buttons\">\n                                                        <\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n<div id=\"acf-block-63f8f80914cf0\" class=\"block wrapped-content block-tight-bottom\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-63f8f80914dfd\" class=\"block-wysiwyg\">\n            <h2>PKU Experts recommend that all people with PKU should have lifelong follow-up<\/h2>\n<p>A group of experts who specialise in the management of PKU created guidelines to assist doctors who treat people with PKU.<\/p>\n    <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-63f8f8091694f\" class=\"block split-content equal-bias bottom-border\" data-muted-autoplay=\"false\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                <div class=\"content-block first-block\">\n                                                                                                                                                                                                                                                                                    \n                                    \n                                                                                                                \n                                    \n                                    <figure>\n                                        <div class=\"image image-rounded\">\n                                                                                            <img decoding=\"async\" class=\"\" src=\"https:\/\/pku.biomarin.com\/en-gb\/wp-content\/uploads\/sites\/4\/2023\/02\/1.2_Desktop_Treatment_guidelines.jpg?v=0.85\" alt=\"\" \/>                                                                                    <\/div>\n                                                                            <\/figure>\n                                                                                    <\/div>\n                    \n                                            <div class=\"content-block second-block\">\n                                                                                                <h2>According to these guidelines, people with PKU should:<\/h2>\n<p><strong>Start PKU management early.<\/strong> PKU management should begin no later than 10 days of age.<\/p>\n<p><strong>Manage PKU for life.<\/strong> PKU is a lifelong condition that requires lifelong care.<\/p>\n<p><strong>Keep Phe levels within range.<\/strong> The amount of Phe in a PKU diet is important to monitor and will be different for every person with PKU. Experts recommend keeping blood Phe levels between 120 and 360 \u00b5mol\/L for children &lt;12 years old and pregnant women, and between 120 and 600 \u00b5mol\/L for people over the age of 12 years.<\/p>\n<p><strong>Restart management.<\/strong> It is never too late to manage PKU. People with PKU who restart therapy may see an improvement in symptoms.<\/p>\n                                                                                    <\/div>\n                                                \t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-63f8f80916ba7\" class=\"block cards cards-2-col block-tight-top\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"cards-title\">\n\t\t\t    \t\t\t\t\t\t\t<\/div>\n\t\t\t<div class=\"cards-wrapper\">\n\t\t\t    \n<div id=\"acf-block-63f8f8091700d\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n    \t    \n\n                    <img decoding=\"async\" class=\"card-image\" src=\"https:\/\/pku.biomarin.com\/en-gb\/wp-content\/uploads\/sites\/4\/2024\/04\/impact_icon.png?v=0.85\" alt=\"\" \/>        \n\t    <div class=\"card-content\">\n                            <h4>See how PKU impacts the way you think, feel, and act.\n<\/h4>\n        \n                                                                                                                                                                                                                                                                                    \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-gb\/phe-in-the-brain\/\" target=\"_self\">Learn more about Phe <\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\n<div id=\"acf-block-63f8f80917098\" class=\"card card-fixed-button\" data-muted-autoplay=\"false\">\n    \t    \n\n                    <img decoding=\"async\" class=\"card-image\" src=\"https:\/\/pku.biomarin.com\/en-gb\/wp-content\/uploads\/sites\/4\/2024\/04\/phe_levels_icon.svg\" alt=\"\" \/>        \n\t    <div class=\"card-content\">\n                            <h4>Explore how to keep blood Phe levels low.\n<\/h4>\n        \n                                                                                                                                                                                                                                                                                    \n                                                                                        <\/div>\n                                <div class=\"card-actions\">\n                            \n                            <p><a class=\"button button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-gb\/managing-pku\/\" target=\"_self\">Managing PKU <\/a><\/p>\n                                                                                    <\/div>\n<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-1467","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - 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