{"id":55,"date":"2023-11-06T10:45:50","date_gmt":"2023-11-06T10:45:50","guid":{"rendered":"https:\/\/liveunlimitedpku-dev-001.azurewebsites.net\/en-gb\/liveunlimited\/?page_id=55"},"modified":"2024-07-01T21:14:27","modified_gmt":"2024-07-01T21:14:27","slug":"what-can-i-do","status":"publish","type":"page","link":"https:\/\/pku.biomarin.com\/en-gb\/liveunlimited\/what-can-i-do\/","title":{"rendered":"What can I do?"},"content":{"rendered":"<div id=\"acf-block-654a10d2ac6e4\" class=\"hero hero-no-overlay\">\n            <div class=\"hero-background-image hero-background-image-desktop\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-gb\/liveunlimited\/wp-content\/uploads\/sites\/8\/2023\/11\/tup.png?v=0.70);\"><\/div>\n\t    <div class=\"hero-background-image hero-background-image-mobile\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-gb\/liveunlimited\/wp-content\/uploads\/sites\/8\/2023\/11\/Tupperware.png?v=0.70);\"><\/div>\n    \t<div class=\"overlay\"><\/div>\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t\t<div class=\"hero-content\">\n\t\t\t    \t\t\t\t    <span class=\"section-title\">Life is complicated when you don&#8217;t have the tools you need.<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t    <h1>WHAT CAN I DO?\n<\/h1>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\n<div id=\"acf-block-6672eb6d8523a\" class=\"block wrapped-content\">\n    <div class=\"wrapper\">\n        <div class=\"inner-wrapper\">\n                \n<div id=\"acf-block-6672eb6d85375\" class=\"block-wysiwyg\">\n            <h2>It&#8217;s time to have a different conversation about Phenylkentonuria.<\/h2>\n<h2>Let&#8217;s advocate together for change.<\/h2>\n    <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n\n<div id=\"acf-block-666a0136be65a\" class=\"block single-video block-zero-top block-zero-bottom\" data-muted-autoplay=\"false\">\n    <div class=\"wrapper\">\n\t\t<div class=\"video-poster\">\n\t\t\t<a class=\"modal-video permitted\" href=\"https:\/\/player.vimeo.com\/video\/970624401?h=ceb5b3a2ca\" style=\"background-image: url(https:\/\/pku.biomarin.com\/en-gb\/liveunlimited\/wp-content\/uploads\/sites\/8\/2024\/06\/video-thumb.jpg?v=0.70);\">Play<\/a>\n\t\t<\/div>\n\t\t<div class=\"video-details\">\n\t\t\t<div class=\"video-details-inner\">\n\t\t\t    \t\t\t\t    <h2 class=\"h3\"><strong>You can have the opportunity to move forward the conversation on PKU unmet needs.<\/strong>\n<\/h2>\n\t\t\t\t\t\t\t\t                    <div class=\"supporting-text\">\n                        <p>Access the PKU message grid that facilitates advocates to have a different conversation about PKU. The <strong>PKU message grid<\/strong> was co-created by the Global PKU International Patient Leaders Council and is a tool for all manner of PKU advocates to align on strategic conversations, gain insights from the key audiences, and learn how to advocate together for change.<\/p>\n\t\t\t\t    <\/div>\n                \t\t\t\t\t\t\t\t    <p><a class=\"button button-arrow\" href=\"https:\/\/pku.biomarin.com\/en-gb\/liveunlimited\/resources\/\" target=\"_self\">Click here to access the PKU message grid<\/a><\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n<div id=\"acf-block-654a10d2acb11\" class=\"block accordion\">\n\t<div class=\"wrapper\">\n\t\t<div class=\"inner-wrapper\">\n\t\t                                                                                <div class=\"accordion-item\">\n                        <div class=\"accordion-title\">\n                            <div class=\"accordion-trigger\">\n                                <span><\/span>\n                                <span><\/span>\n                            <\/div>\n                            <h2>How can I support the Live Unlimited campaign on social media?\n<\/h2>\n                        <\/div>\n                        <div class=\"accordion-content\">\n                                                            <p>You can do this by:<\/p>\n<ul>\n<li>Tweeting your local policymaker about the campaign and PKU<\/li>\n<li>Sharing and liking the videos on our YouTube channel<\/li>\n<li>Sharing campaign content on Facebook, Twitter and Instagram and retweeting content from others in the PKU community<\/li>\n<li>Share the link to our website in your own social media posts<\/li>\n<li>Download our campaign poster <a href=\"https:\/\/pku.biomarin.com\/en-gb\/liveunlimited\/\" rel=\"noopener\">here<\/a><\/li>\n<\/ul>\n                                                    <\/div>\n                    <\/div>\n                                                                            <div class=\"accordion-item\">\n                        <div class=\"accordion-title\">\n                            <div class=\"accordion-trigger\">\n                                <span><\/span>\n                                <span><\/span>\n                            <\/div>\n                            <h2>How else can I help?\n<\/h2>\n                        <\/div>\n                        <div class=\"accordion-content\">\n                                                            <p>You can help raise awareness of the <strong>Live Unlimited <\/strong>campaign and PKU in lots of other ways. For example, request a copy of our campaign pack and share content with your colleagues by email, or bring PKU into the conversation over dinner with friends.<\/p>\n<p>You can email <a href=\"mailto:LiveunlimitedPKU@bmrn.com\">LiveunlimitedPKU@bmrn.com<\/a> if you want to ask about getting involved in a different way.<\/p>\n                                                    <\/div>\n                    <\/div>\n                                                                            <div class=\"accordion-item\">\n                        <div class=\"accordion-title\">\n                            <div class=\"accordion-trigger\">\n                                <span><\/span>\n                                <span><\/span>\n                            <\/div>\n                            <h2>Where can I get support for my family or someone I know with PKU?\n<\/h2>\n                        <\/div>\n                        <div class=\"accordion-content\">\n                                                            <p>If you want help, support, or guidance, the community of patient groups in your country are best placed to do this. Check out the <a href=\"https:\/\/pku.biomarin.com\/en-gb\/liveunlimited\/patient-support\/\" rel=\"noopener\">Patient Support<\/a> page for information on these groups and the support they offer.<\/p>\n                                                    <\/div>\n                    <\/div>\n                                                                            <div class=\"accordion-item\">\n                        <div class=\"accordion-title\">\n                            <div class=\"accordion-trigger\">\n                                <span><\/span>\n                                <span><\/span>\n                            <\/div>\n                            <h2>How can I fundraise or donate to the charities involved?\n<\/h2>\n                        <\/div>\n                        <div class=\"accordion-content\">\n                                                            <p>The <strong>Live Unlimited<\/strong> campaign isn\u2019t collecting donations or fundraising. However, you can visit each of the patient organisation websites for information on how you can fundraise and support their activity in other ways. You can find their details on our Patient Support page.<\/p>\n                                                    <\/div>\n                    <\/div>\n                                                                            <div class=\"accordion-item\">\n                        <div class=\"accordion-title\">\n                            <div class=\"accordion-trigger\">\n                                <span><\/span>\n                                <span><\/span>\n                            <\/div>\n                            <h2>Where can I find out more about PKU?\n<\/h2>\n                        <\/div>\n                        <div class=\"accordion-content\">\n                                                            <p>You can find out more about the disease on the About PKU page, or you can contact your local patient group, who\u2019s details can be found on our Patient Support page.<\/p>\n                                                    <\/div>\n                    <\/div>\n                            \t\t<\/div>\n\t<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.1 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>What Can I Do? | Live Unlimited PKU<\/title>\n<meta name=\"description\" content=\"You can help raise awareness of the Live Unlimited campaign and PKU in lots of ways. 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